Not many of my friends know that I have PD, I get tired of explaining how it effects me and that I can't write. And the floor feels like it moving all the time under my feet and I see and feel things and there's nothing there. Well today I went to play Bunco with the women that
are there every month. You have to keep score, so you have to write on a little pad. You have a partner, so I asked my partner at each game, if they would do the scoring, they were all very gracious and did the scoring. Then at the very last game, I had a new partner, I asked her as I has asked the other if she could doing the scoring and told her I couldn't write. She replied "You can write, you just don"t want to keep score." I said "No I have parkinson's". I she was so embarrassed and kept saying "she was sorry". I think the whole group knows now, I started crying. I really wasn't ready to let them all know. Because then every one is going to come and say "I'm so sorry", But they surprised me with their compassion. One woman hugged me and said "it's okay we love you." then she told me" she was a nurse and had taken care of a women who had PD and if I needed any thing to call her. She said its an terrible disease and to promise her that I will cal her If I needed anything". The one that had stared the whole thing gave me her number also. I hate this, I don't want to see piety., that's the reason I didn't want to tell them. I have 2 friends who know,1 usually goes to appointments with me, so she can fill out the paperwork.There are a lot of very wonderful people out there. Because this is an older 65-79 they knew what Parkinson's was.
Hugs,Hugs,Hugs
Precious44
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Precious44
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We human beings need to be touched in a non threatening way. and Hugs are the Best. I never can get enough. Thank you for your Hug, here is one for you ( )
Thank you so much, I really need hugs today. Today is my husband Birthday, but he is an angel in heaven. I miss him terribly. He was a wonderful man, and we only had 3 1/2 years of joy,unconditional love, fun,dancing, garage selling and and antiquing every week end. I had a surprise Birthday party planed for him he would have been 60, but he died 8 days before his birthday. He surprised us.
People who love you for you don't pity you. Maybe only people who don't really know you as a person, and who cares what they think. That's how I feel anyhoo. I hadn't thought about people pitying me. That's because I live in New York City
I did keep it from my yoga instructor while I was recuperating from torn meniscus and didn't even take cane to class. I didn't want him to go easy on me.
PatV I have been told that it is false pride....If so yes I have it. Because I don't let anyone know if I am in pain, or my tremors are bad between medication.
Hi Precious I just join this group not long ago and I am happy I did.People here talk to each other about anything . nothing is unimportant and everything is on agenda. Taking about hugs , hugs are great, important to human and animal world. Is sometimes the only way to communicate . I too like hug from time to time. But the most precious gift was given to me by my autistic grandson , who for long time , did not know haw to and what was the purpose of it . He did't like to be touched softly.I like you to know , he is highly intelligent boy , his GPA is consistent 3.5 sense he started school now he is graduating from high school . Want's to build rockets . Boy I can go on, someone stop me. Well one day we were playing and he wanted to play something else , so I sad ,OK I do that with you. He squeal in delight and trow him self in my arms he sad, I LOVE YOU GRANDMA, no mater what I throw at you you are always ready and say yes. Thad day he started to. understand , what the hugs were and y people like them and why they are given . I LOVE HUGS.
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