Hello all! Curious if anyone here has ever experienced gastric freezing while in an off period? Or does the freezing start and the off period begins? If yes, what does it feel like for you? I’m trying to figure out if what I’ve been experiencing is gastric freezing.
Consequently, my L/C is now lasting only an hour and a half to maybe two hours.
I’m starting to think and also starting to figure out how my body is working with the changes that PD brings with it. Any information would be helpful. Thanks.
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MissRita
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Then I guess I’m not quite sure what I feel is going on. For instance I took a pill today at 4:30 and within an hour I could not stop tremoring so as soon as I had a meal I was fine for about 45 minutes to an hour and then my gastric system started to move the food along and as soon as that started happening the tremors started happening and that was around 7 PM tonight and I have not been able to stop shaking since.
I do not understand it either. You have this interesting connection between tremors and what is going on in your G.I. tract. All I can suggest is to try to figure out which are the consistent elements in the pattern.
Tomorrow I will see the neurological nurse practitioner to see what she suggests and also hopefully will see the doctor tomorrow too. It really doesn’t make sense and it just started within the last few weeks. I definitely think it has something to do the enteric nerve and possibly the Vagus nerve.
Basically anytime and I get nervous or have anxiety the gastric system starts and then I start to tremor. Additionally, anytime I’m trying to digest food or if it’s moving along the digestive track I start to tremor. Interestingly yesterday when I went to the bathroom I noticed that when I urinate and have a BM I tremor before during and after and then when the body knows it’s defecated the tremors start to subside but that takes time.
Sounds like the biphasic dyskinesia I used to have. I would tremor (to the point of myoclonic convulsions) for two hours when my C/L dose was starting and ending with an hour to two hours of calm in-between. For some people increasing the dosage helps or a steady state agonist patch like neupro.
Well oddly enough today I went a whole 6 hours with no symptoms! Lol then I took 2 tabs at 130 and have been OK since 3 pm...every day is an adventure! 😎
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