Hello, I'm new here. I want to thank this community for the help and information that I have already found from reading some of the posts here. We are newly PD diagnosed as of December (my husband physically, I as the care person, support, researcher, etc., etc.).
My husband is is on senemet and we are choosing to work with an NP and go that route. We will be getting him on B1 after we get labs to check his B1 level.
I was wondering if anyone out there has any information about detoxification and saunas for PD?
And one last question ~ Is there a source for support for the care person?
Thank you for your help.
Written by
Lizzy9
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Welcome to our community. I facilitate a Caregiver Support Group in my area and understand how important it is. If you to to Parkinson.org, you can search for local chapters and Support groups near you for Caregivers and PWP's. Unfortunately the Pandemic has kept us from meeting in person but I am certain they can help you remotely till the situation stabilizes and we return to normal.You can also request written booklets or PDF's with loads of information. These resources are free. Please feel free to send me a chat if you have any questions.
Wifeofparky ~ thank you for your information. I will definitely check all these out. I have really good support of friends and family, but sometimes I feel like I need to talk to someone who has been there.
Regarding support : Can you tell us your general location ( not your address )
Regarding Saunas: Many people react to PD and medication differently . We bought a hot tub ( not a sauna but similar ) a few years ago thinking it would be relaxing and after 2 years realized that I just could not use it . The high temperatures triggered PD reaction and stress. Expensive mistake , but my daughters family now has it and use it.
Hi Lizzy. I hope what I am telling you will help you in your Pd journey. Like everything; what you put in is what you get out.If you choose the medication route you can only continue to go downhill, because no Pd medication reverses the progression of Pd. If you want your husband to possibly start getting better and he is prepared to put some effort into achieving that goal, then what I am suggesting costs nothing! Only some easy physical effort.
I have had Pd symptoms since 1963. I was only diagnosed with Pd in 1992, and took Pd medication for nearly ten years. In 2002 I was able to stop the medication and have been medication-free since then. I am now 86 years old and still enjoying life.
If you are interested then contact me at johnpepper@telkomsa.net.
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And the beat goes on, and on
B1 and High Blood Pressure
New and current hope for Parkinson's Disease
Website: Dr Costantini's guidelines on Parkinson
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