Greetings from Indiana......

[GrandmaBug]

Hello all. I am GrandmaBug. I was diagnosed with Parkinson’s on August 20, 2020. I look forward to being part of this forum.

[Nitro53]

Welcome

[Hidden]

Vitamin B1 use instructions ;

Join Facebook group Parkinson’s thiamine hcl

m.facebook.com/groups/23226...

Parkinson’s relief web page



[GrandmaBug in reply to Hidden]

I think I am already a member.

[chartist]

Welcome to the forum, GrandmaBug!

If you have questions, feel free to post them. I think you'll find some of the latest information regarding PD here and some great people!

Art

[park_bear]

Welcome, Grandma Bug!

A fighting spirit is what it takes to handle this condition!

[Erniediaz1018]

Welcome, I can see you’re going to be wonderful addition (motivator) to this therapeutic community. Beautiful pic

[Cleo16]

Welcome GrandmaBug.💐

[Parkie-]

Welcome! You are looking good there boxing!

[BootsOn]

Hello and welcome

[Millbrook]

Welcome. You will find a great caring and encouraging community here.

[PalmSprings]

Welcome. You have found a great forum. Definitely, keep punching!

[GrammyC]

Welcome! I am also a Parkie grandma from Indiana. I was diagnosed in September, 2009. This forum has helped me tremendously. I am sure you will find it useful,too.

[GrandmaBug in reply to GrammyC]

I live near West Lafayette, proud Boilermaker. Where do you live?

[GrammyC in reply to GrandmaBug]

Fort Wayne. We are Boilermaker fans! My husband and both of our kids are Purdue alums!

[GrandmaBug in reply to GrammyC]

My husband is a retired Purdue professor. I a grad and our kids and their spouses are grads.

[laglag in reply to GrandmaBug]

We're both Purdue fans also! My husband graduated from Purdue.

[GrandmaBug in reply to laglag]

Awesome! When and in what did he graduate? I see you live in Indy.

[laglag in reply to GrandmaBug]

He graduated with an Bachelors in Engineering I'm not exactly sure what year he graduated, sometime early 80's. We got married later in life. We met at Allison Transmission. When did your husband retire and what did he teach? My brother earned a master's from Purdue. He teaches at Azuza Pacific in California. He probably graduated in late 80's.

[GrandmaBug in reply to laglag]

My husband retired about 2.5 years ago. Shortly after, he was diagnosed with stage three colon cancer. He is in remission right now. He was/is an entomologist, taught a class of 500 for many years, one of the most popular classes on campus, everything about bugs, and he was the creator of the Bug Bowl.

[Millbrook in reply to GrandmaBug]

Read about Joe Tippens protocol for cancer and what to take to stay in remission

mycancerstory.rocks/single-...

[GrandmaBug in reply to Millbrook]

Wow! Fascinating! Do you happen to know how he is doing in2020? I'd sure like to know others who have also used his protocol. I'm printing up the article. Thank you!

[Millbrook in reply to GrandmaBug]

Hi. You can join his private Facebook group. There is a password at the end of his blog that you use to ask for entry into his fb group. There are heaps of people there who share their experiences. My husband has been on the protocol for a year

[chartist in reply to Millbrook]

Hi Millbrook,

How is he doing?

Art

[Millbrook in reply to chartist]

He is good. Now on 20 mg of melatonin and number of times waking up to pee about 5 from more than 10 so getting better. I was thinking of increasing but he was having active dreams so I will keep it at 20 mg and monitor. Cystoscope in December and so far been clear.. but I am not so keen to have the immunotherapy after the last maintenance caused this problem. I myself on 10 mg melatonin n getting used to it after initial stupor. 😂. I m hoping it will help my prediabetes.

I started my husband on coffee fruit after Getz shared about how it increases BDNF by 143%. He’s been on it 2 weeks. Also tried going back to red light therapy after John reported great results doing 45 mins in morning and at night for his mother. It’s hard to be consistent when I have to be the one chasing him to do it. He reported that he smelled the cigarette smoke from someone when we were out walking. So it could be the coffee fruit or the red light or the melatonin. Really don’t know at this point.

Thanks for asking Art. You are such a gem. Thank you

[chartist in reply to Millbrook]

It seemed like you were very concerned some posts back about his condition, so I just thought it was a good time to ask and I'm glad I did because I love to hear about people getting their health to a better place! Continued success to both of you!

Art

[chartist in reply to Millbrook]

Btw, melatonin increases BDNF and GDNF also, but it can also decrease over elevated BDNF as a means of reducing pain associated with over elevated BDNF. This may illustrate the homeostasis potential of melatonin.

Art

[AmyLindy in reply to chartist]

Love ❤️ Melatonin

[chartist in reply to AmyLindy]

Me too!

Art

[GrandmaBug in reply to Millbrook]

What coffee fruit brand do you buy?

[Millbrook in reply to GrandmaBug]

Swanson. It was Getz who brought it to my attention. One capsule of 200 mg in the morning. But we also take melatonin. Read Art’s post on melatonin. My husband takes melatonin and curcumin before he sleeps.

[AmyLindy in reply to Millbrook]

So, coffee fruit by Swanson is a 200 mg capsule- not a food?

[AmyLindy in reply to Millbrook]

Coffee fruit?

[Millbrook in reply to AmyLindy]

Coffee cherry

[Hidden in reply to Millbrook]

Cascara ? Coffee cherries I have this

I think it’s a good idea but I’m always looking to improve if you have recommendations

Coffee cherry tea

[Millbrook in reply to Hidden]

Geez CC, I didn’t know there was such a thing- the tea that is. What does it taste like? Mine is the Swanson full spectrum Coffee Cherry 200 mg in 1 capsule.These supplements really do work. Recently I gave my husband Hawthorn ( supposedly good for the heart, arrhymia, tachycardia, cholesterol , BP) and we had to reduce his BP meds by half because BP came down. It sure beats taking hardcore meds.

[Hidden in reply to Millbrook]

The cascara tastes so gross but I’m very fussy. I dislike most of what I eat but I think of food as medicine. It’s quite mild really. The only reason I haven’t ordered the Swanson coffee cherry is bc it’s not organic but maybe that’s silly. Does he take matcha or EGCG? I mix 1 teaspoon of matcha in to about 1/8 cup of goat milk yogurt to get both over with. But I think I would like to switch to EGCG.

That is amazing that the Hawthorn has worked so well! That is so uplifting to hear!

[Millbrook in reply to Hidden]

He does not take matcha or EGCG. It can interfere with sleep and give palpitations.

[GrandmaBug in reply to GrammyC]

When and in what did you and your kids graduate? We love meeting fellow Boilermakers.

[Dholplayer]

Welcome 😁

[laglag]

Welcome! I live in Indianapolis, but I'm not a grandma. Good job with the boxing. Do you go to Rock Steady Boxing? 🥊

[GrandmaBug in reply to laglag]

Sure do, and I power walk using the method of John Pepper. I do Pilates and plan to add more variety of exercise when the Gyms open back up. I also follow the Wahls Protocol diet, level three, ketogenic.

[Redginger in reply to GrandmaBug]

Welcome to the group! My husband is in the third year since we noticed symptoms. First of this month he started trying the Wahls diet, more at level one or two (don't remember the details). It is difficult. He was already gluten free and was watching sugars but he gets hungry every couple of hours and has very low energy. He started trying to do JP's fast walking, but has lost so much energy that it is not working. He is working with B1 right now trying to get proper dose for him, hoping that will provide some relief and energy benefit.

[GrandmaBug in reply to Redginger]

My advice is to keep up the Wahls Diet...no grains, no sugar and no dairy, lots and lots of veggies and the prescribed meats. Just try to do it for several months if you can. It took four months before I could tell a difference. As for JP walking, my advice would be not to worry so much about fast, but to concentrate on walking heel toe, heel toe, standing up straight, and swinging your arms. Think about every step. Speed can be added later.

[AmyLindy in reply to GrandmaBug]

I admire your keto - I learned a lot from Dr wahls - but can’t manage keto. Wish I could! You still doing it? I’m ok w IF which puts me in ketosis, though!

[GrandmaBug in reply to AmyLindy]

Hi Amy. I still do the Wahl’s Protocol, but for summer I do closer to level two because of all the vegetables and fruits we grow in our garden. I definitely IF and I avoid sugar, all grains and dairy. I exercise a couple hours most days. Two years in I’m still not on meds. I also do the B1 protocol, sublingual. Let’s talk one of these days. So proud of the video you did.

[AmyLindy in reply to GrandmaBug]

Are you Christine T? Y’all sound identical… Lol

[GrandmaBug in reply to AmyLindy]

Yes

[Zella23]

Welcome to this informative and helpful forum! Awesome people caring and friendly🙂

[Bron60]

Welcome. It’s an interesting space

[Wonky-Bride]

Welcome Grandma Bug. This is a good place to find interesting debate and good advice.

[1LittleWillow]

I'm also from Indiana, USA, and was diagnosed 8/13/2018. This forum is one of my favorite sources for PD info. Hi!

[GrandmaBug in reply to 1LittleWillow]

Where in Indiana are you?

[1LittleWillow]

Saint John in NWI, about 29 miles from downtown Chicago. I did my BA at Purdue Cal.

[PalmSprings]

Hi, you should think about joining the Zoom meetings. I do the Sunday morning one. I find it so comforting to talk to people going through the same things.