Speech and sinemet

[Kt088]

Anyone have any speech problems when they are “on” after taking sinemet?

[Ramondo]

My speech problems started six months ago, I hate talking on the phone now, been on sinemet for six years,

[JeanieBeanie in reply to Ramondo]

I can hear my husband better when he is 'off' but too much Sinemet can make his voice worse. Getting the correct dose is vital.

[grandmama16]

I've wondered if it's PD or Sinemet that causes my hubby's breathless and soft speech. I have trouble understanding him but I do have a hearing problem too, plus loud tinnitus. I hate talking on the phone. I have Fibro., Epstein Barr and mild diabetes. We're mid 70's. He has balance problems too and needs to walk more....or go to PT. He and I both have a lack of initiative tho. I heard that he can go back after our shut down around here but he just won't. Our monthly social and PD info meetings are still postponed. We go to store and church(limited amts) and with masks, but that's about all except seeing family at times. We both have trouble with stairs. Hubby is in the control group in a Univ. controlled exercise study vs very little. He wears a bracelet that sends out info.

Another thing....does anyone else have swollen feet. We can't seem to get his down. Yes, he's overweight 260 and our diet is awful, liking snacks. M.A.

[DeanGreen in reply to grandmama16]

Hi Grandmama,

My Dad who is in his mid 80s has been diagnosed with PD for about 10 yrs. Within the last year, his speech has deteriorated to gasps of sounds and I cannot understand him at all, although he has had voice therapy. It is rather frustrating to carry on a conversation. I have been diagnosed with PD for 11 yrs and have recently loss of voice, but only intermittently but later on in the day while in the "on" state, only after I've had a few doses of Sinemet. In the late evenings when I stop taking the Sinemet, my voice returns. So, I have attributed it to the Sinemet. Is your husband taking Mirapex (pramipexole)? After I cut back on the Mirapex, the swelling in my feet went away. Just my personal experiences with PD.

[ScribblerCLT]

Began before Sinemet and no better with Sinemet for last 2.5 years.

[TR8Man]

Statistics show that 9 out of 10 patients who have PD will experience speech difficulties which can contribute to choking. Also, 7 of 10 PD patients will die from asphyxiation - choking.....I get to work with Parkinsonvoiceproject.org to help me with my voice. They are offering their speech therapy sessions daily @10:00 am CDT. These sessions last approx. 30 minutes. NO CHARGE. PVP has transformed my speech, my attitude towards PD. This therapy is world class / state of the art.....I do not receive any compensation for this note...Come to the call....Go to parkinsonvoiceproject.org, look for the link which will take you to their Facebook page. Bring a glass of water, an open mind and I assure you will notice a difference in your voice - others will too...