People that have been following me may already know this. My Dad and Grandpa both got Parkinson’s in their 60’s. I was diagnosed 6.5 years after my dad died and had a number of awful/stressful events until I was officially diagnosed with PD in 12/18 at 38.
I had been on celexa for a number of years on a low dose. After my dads death, 2013,I increased. My movement had become a little off. In 2015 I had a knock to the head requiring 8 staples.
My friend who’s dad had Parkinson’s all his life noticed I started to move my neck like his dad after this. The weird part is I had little pain. I ignored it because my mom was on hospice. After she died in 8/18 I saw my first neurologist. He said I didn’t have Parkinsons. I’ve always had an unusual gait but I had slowness in my right hand and held my right arm against my chest. I talked to that friend (dad had PD) asked him what his dad 1st Symptom was. Arm toward chest.
I was terrified. Doubled my celexa. In 3 months I could hardly walk. Thought PD was taking over. Had DatScan on Celxa (possible but unlikely can cause false positive, should have been off) and showed PD 12/26/18. Had 0 response to c/l. Doc said I could be too early. Stayed on all drugs till Sept 2019 with no help but no progression.
Decided to wean of Celexa 9/19 Instant improvement. Completely off by Thanksgiving. Felt quite a bit better. Walk over 50 percent better. Questioned DatScan. Still walked bad but not near as bad. Cold turkey off c/l 12/19. Way stupid Neuro Malignant Syndrome. Bad anxiety but much better symptoms. Never went completely away. At this time I thought it might get better. Thought I started celexa in 2013, wrong, only increased dose.
Devastated. Started lexapro. Sister drug to celexa. Helped with emotions but I couldn’t walk again and return of severity of symptoms. Tried c/l, 0 help.
Friend told Me about NUCCA chiropractor. What the hell? He works on the top of your neck. Thought he was a quack but friend said different. Met him, seemed like a quack. 0 placebo. Laid me down. Right leg 4 inches higher than left. Had no idea.
Asked me about head injuries in past. Said 2015 story. Actually remembered MRI radiologist noticed neck injury. Neuro Said it was nothing.
Quack then said I don’t have PD. Pissed me off. He did an X-ray. Said it was as bad as he has ever seen. Surprised I could walk. He then adjusted me. Felt like almost nothing but heard nearly 100 pops. Laid down again, normal legs.
I could walk a ton better. Slept way better. Symptoms are way better in 2 days.
Most likely I still have PD. Not sure. I hope my story might help someone who might’ve had a neck or head injury before getting diagnosed with Parkinson’s. The most trusted neurologist Completely disregarded with the MRI doc said. His report said I had a definite problem or something on my neck.I had no reason to second-guess him.
How is modern medicine fix my problem? Neck surgery? Chiropractors can and a lot of times are quacks. But this has helped me more than I have ever hoped or imagined. Seriously. I hope this information helps someone.
Cameron