Ultrasound for Tremors - Research - Cure Parkinson's

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Ultrasound for Tremors - Research

Tenafterten profile image
13 Replies

Minimally invasive procedure relieves tremors in Parkinson's patients

sciencedaily.com/releases/2...

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Tenafterten profile image
Tenafterten
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13 Replies
pvw2 profile image
pvw2

I'm wary of this because it is supposed to work by killing cells. It sounds like the non-surgical equivalent of Michael J, Foxes surgery,

in reply topvw2

I agree with you.

Mom95 profile image
Mom95 in reply topvw2

That's what my neurosurgeon told me.

tigerclaw profile image
tigerclaw

Hi all... When my mom was ready to proceed with the focused ultrasound, two days before she found out from the doctor specialist who would do the focused ultrasound and the radiologist, when they put the paper to sign front of us that she can pick and chose which hand she want to improve, the left one or the right one... Because they can only do one hand explained to us at the Hospital. We where waiting for two years to do this... And here comes the biggest issue what they did not addressed to my 76 years old mother is before in all this waiting so this is ridiculous "after the finished focused ultrasound treatment she can lose 25-to 40% of her mobility and that could be forever! And everyone who going for it will take this chance." My mom mobility is all ready rusty with shaking hands , so we decided not to go for it.. Imagen what is worst, not to walk stable anymore or worst comes to worst maybe can't even get up anymore just because they fix 65% only one shaking hand. Just wanted to share this with you all.. We left without signing anything, and all this waiting and hopes done to the drain to this Super Focused Ultrasound what they begging about ! What a joke!

Merry Christmas and Happy New Year all of you...

Tenafterten profile image
Tenafterten in reply totigerclaw

Thanks for sharing this information. Much appreciated.

mistydog1 profile image
mistydog1 in reply toTenafterten

I actually had the MrgFUS procedure done in Boston on 10/19. I'm in a study that's being done. My symptoms were strong dyskines pronounced on my right side. Being I am only a few months out from the procedure the results have been really positive. I no longer suffer from the sever rigidity of my neck and lower back. When I am on I feel like a normal person my movements are more free-flowing as I walk. There are two different areas of the brain that are being study right now in trial studies using this method . I had what they call a pallidotomy.

Gioc profile image
Gioc in reply tomistydog1

hi mistydog, have you maybe had any major side effects if i can ask. Thank you

mistydog1 profile image
mistydog1 in reply toGioc

Hi

No I haven't had any!

Fighttolivenow profile image
Fighttolivenow in reply tomistydog1

Hi mistydog your recent post brings alot of hope to many looking into this procedure. Many are concerned of side effects, duration of benefits and long term impacts. I hope the benefits for you lasts a very long time, please dont forget us and post good or bad as time progress. Many are looking to you pioneers to make decisions for their own livlihood. I wish you the best of luck!! Joyful and healthy 2020

mistydog1 profile image
mistydog1 in reply toFighttolivenow

Here is the web sight of the people who make the equipment watch the videos . Why I went for it was because of how less invasive the procedure is. If I want to go for DBS later on I still can.

insightec.com/us

mistydog1 profile image
mistydog1 in reply tomistydog1

You will find this link pretty interesting I think

file:///C:/Users/Mary/AppData/Local/Microsoft/Windows/INetCache/Content.Outlook/6UET09Q4/Focused-Ultrasound-Foundation-Parkinsons-Disease-BBB-Workshop-2018-Report.pdf

Fighttolivenow profile image
Fighttolivenow in reply tomistydog1

Couldn't get to this file

Trixiedee profile image
Trixiedee in reply tomistydog1

Mistydog, has the dyskinesia improved on the untreated side too? Have you been able to cut down on meds? Do you still have off time?

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