Anyone having trouble with hallucinations?
What causes this to happen? Too much medication? Part of the progression of PD?
It’s scary! Our daughter has started having them more often.....seeing people that aren’t there or thinking someone has been there when their not or haven’t been.
I’m really worried. Gonna check with the doctor on Monday.
I see people or cats right before I open my eyes in the morning.
Dad had a lot of trouble with this following his bowel cancer surgery. He no longer has any problems although at the time we thought this was permanent. We suspected the medication. He switched from oral sinemet presurgery to madopar in itu and then rotogidine patches. The patches are more associated with hallucinations but he is currently on them and fine on them. (At least, no longer hallucinating on them - he is due to switch back to sinemet to see if that helps his freezing better)
I think a lot of it is to do with weakness and fatigue and infections. My godmother, who doesn't have PD also hallucinated in hospital when weak with a bladder infection
Although my hallucinations were few My doctor lowered my Amantadine does to one a day instead of twice a day and I haven’t had any future hallucinations since then
I had the same experience. Two to one and they went away.
My husband had hallucinations, such as seeing 250 people moving our travel trailer, and psychosis that made him totally out of touch with reality. He was put on quetetiapine , 25 mg. 2Xday, mirtazapine 1 1/2 tabs at night and 1 and1/2 tablets of atenolol once a day. He was already taking atenolol for his BP, but the pyschiatrist added the half dosage, and now he is not psychotic and doesn't have hallucinations. He takes Rytary also.
I’m curious... how did atenolol help with hallucinations??
It was part of the whole group of drugs that fought the psychosis that was basically causing the hallucinations. He took the quietipine first for the hallucinations , they stopped pretty much except for the psychosis which would keep him up all night, wandering, out of control, wanting to die.
The mirtazapine added to the quietipine stopped that. He still has a constant stomach ache that the doctors all think is caused by anxiety. He would sit in his room and scream; it sounded like a torture chamber. Then a psychiatrist we visited put him on half more of the atenolol he was already taking, and a half more of the mirtazapine.
That stopped the screaming. He still makes noise but he's always been a noisy guy. I asked why the increasing of atenolol worked and the psychiatrist said he couldn't tell me,he didn't know why. I'm an RN so i thought that was a stupid answer. I looked it up and it seems to work for people to calm them down by taking one before making a speech and so forth.
My husband was on Sinemet at the time and switched to Rytary. Too much dopamine can cause hallucinatons. Now he is on Rytary. It is expensive but i found an assistant league that pays for it.
We found a motion specialist that switched him to the Rytary, it is released more evenly into the system.
His original psychiatrist was a horrible man who hated his patients. You have to keep trying to find the right care. I suspect the Sinemet, or what ever dopamine she takes causes the hallucinations and needs to be cut back.
And just so I’m clear, atenolol is normally given for high blood pressure, yes?
Yes, he has taken it for years for high blood pressure, the psychiatrist gave him stronger dose along with the miritizipine to stop the screaming.
My mother had hallucinations, the cause was patches and madopar i think. After we remove those medications she was fine. That was 2 years ago and it never happened again!
In my husband’s case, it was overmedication. One neurologist told us to always try to use the lowest doses possible that help the symptoms. He lowered his dose of Pramipexol and it did the trick. When we moved and had to find a new neurologist, the new doc increased his meds. The side affects, for my husband, were a lower cognitive function and nighttime hallucinations. Back to the lower dose equaled fewer side effects. It seems to be a balancing act and you must work with the docs to find the best solution.
My husband who has had Parkinson’s for 6 years has hallucinations daily. We’ve tried everything to rid him of them. He is on Sinemet 25/100 and has reduced them On his drs advise got down to three a day but noticed a decline in his walking and caused some confusion. I put him back to 4. Both a bit better but not the same. I’m leaning to Lewy Body Dementia as the possible culprit!
Hallucinations are very common in late stage PD.
Late stage??
My husbands neurologist told us that hallucinations were more common in the late stages..
yes mine said the same , but also said a med itself can be the problem most of the time, had very sever problems with artane, landed me in hospital for a month, actually a nursing home, that was a fun time in my life... 8(
There is a fairly new medicine for treating hallucinations. It is called Nuplazid. It worked wonders for my husband. It is expensive it cost $2,300 for 30 tabs. I got in touch with the makers and they gave it to us for no money. Check it out.
My husband never took arcane.
My husband who has pd for over 13 years has had them quite often. On this site I learned about a caretaker that gave her husband niacin for hallucinations and started giving it to him. That has helped a lot!
I made a mistake up above, it was the first neurologist who was a horrible person, not the psychiatrist.
I had major probs with a med called Artane, once i was off that crap, they went away in a day or so, but yes it was scary as hell
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