My uncle who is 75 was detected with Parkinsons. Recently he was hallucinating that he and his wife were stuck on an Airport. The authorities were not allowing him to leave the Airport and he could leave the airport only if he would pay a fee or a fine. He was calling up most of his relatives asking for money so that he could get released from the Airport.
He called me too but my aunt explained to me that he has been having similar hallucinating experiences in the recent past
I stay in another town and therefore could not go and meet him immediately
But my question is
1. Are there any medications which can prevent these Hallucinations?
2. What should a person do to help a PD patient to convince him that he is hallucinating?
Written by
Anon27
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"Some patients can be treated with reduction of psychoactive medications that are unrelated to PD, and some may tolerate reductions in PD medications without intolerable worsening of motor function. The remainder require treatment with medications that reduce psychotic symptoms, which include cholinesterase inhibitors, clozapine, pimavanserin, and possibly quetiapine and electroconvulsive therapy. Only clozapine and pimavanserin have unequivocal evidence for efficacy and motor tolerance."
He died several years ago. He never really believed that his hallucinations weren't real. It didn't seem to stress him. When he'd believe he was seeing 250 people pushing our travel trailer, we'd just tell him that they really weren't t ere. He was on Rytary which acted a lot better than carbadopa/levodopa for his Parkinson's symptoms. The later wore off and caused misery.
My husband had hallucinations in February when he has a worsening of all parkinsons symprons but it turned out to be because he was constipated and when that was corrected with an enema and laxatives he was ok again, he's not had any since and has been going to the toilet every day and managed to cut laxatives down to 1 every other day by eating more vegetables.
Hello. Nuplazid is for Parkinson's hallucinations, but talk to your doctors and your pharmacist because medications can cause hallucinations. They may need to be adjusted. Also check for Bladder infection. They can cause bizarre mental symptoms/behaviors even when there is no pain/blood with urination. It's so interesting that constipation can cause them. I had never heard that before reading the comment below.
My husband went to the ER with hallucinations and they gave him Haldol. We found out later that it has a warning Not to use it for Parkinsons, but the doctor said there was nothing else he could have done. I think he just was not familiar. Later his neuologist said Quetiapine would have been better. Haldol is known to worsen parkinson's symptoms even long term.
Nuplazid takes care of the hallucinations, but it took a little while to build up in his system. He had to take some quetiapine in decreasing amounts at the beginning along with the nuplazid. Nuplazid is super expensive. A grant from the Healthwell foundation pays what the insurance company won't.
His neurologist's office help us with that. They contacted the Nuplazid support people for us and they got in touch and referred us to some foundations for help with the financial stuff. It went very fast and easy with them. The application was done on the phone in about 5 minutes -no invasive questions and we didn't have to send documents except for the prescription/dr. orders.
Nuplazid was something my husband took also. We went to the drug manufacturer and got it for a $100 monthly co-pay. some of my memories are confusing because right after he died I got breast cancer and was messed up for awhile.
I suggest you check vitamin B1 therapy for Parkinson's disease. It you type those 3 words in the search box you will find many helpful posts on this matter.
Very often hallucinations of that caliper stem from the medications given for Parkinson's disease, however, B1 therapy still helps.
Thanks for all the suggestions. I can see a lot of information related to medicines and I do not think that it would be appropriate for me to suggest them to my uncle as he is already getting treatment from a doctor. Also, I guess the medicines work on a case to case basis and what works for one might not work for another.
Thanks to all for taking the time to share your views. I really appreciate it.
You are correct in that what works for one might not work for another. He will need an excellent caregiver that is willing to research as much and as fast as they can (this site is a great resource) and work with the right movement disorder specialist because they know more about Parkinson’s. It’s the caregiver who has to figure things out. Doctors only have so much time per patient (which is very little). As my wife’s caregiver, I had to ask our movement disorder specialist if we could try Clozapine after trying quetiapine and Pimavanserin that did not work at all for her. Clozapine worked and has made it easier for us to do the other things to reverse the Parkinson’s such as high-dose B-1 therapy and more exercise. It’s been a long hard road but it’s working and I couldn’t be happier. God bless you for taking an interest in your Uncle’s situation and please help him as much as you can and above all make sure he knows you really do care about him.
Thank you for the kind words. After reading through the responses and listening to my aunt talk about her experience managing my uncle, I realize that it requires immense patience and an understanding of the patient’s condition from the caregiver. I applaud the caregivers.
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