Dystonia

[Tilly56]

Hi I've been diagnosed with parkinson two years ago. in the last 6 months I've had a stiff neck and stiff shoulder on the right s ide of my body my friend says its dystonia and nothing can be done about it, pain killers don't help, anyone else had this problem

[Hidden]

Have you seen a Movement Disorders Specialist (MDS)? You are describing classic signs of unmedicated Parkinson’s. You will need medication to make your symptoms go away.

[Tilly56 in reply to Hidden]

I take seven tablets a day for pd

[laglag]

I have a stiff neck & shoulder occasionally & I go see a chiropractor reguarly. He helps every time. He's not the type that "cracks" your bones, he basically digs into pressure points. He has actually helped my tremors. They eventually come back but aren't as severe. I never thought about it being dystonia, but it might be. I also take Emergen C. It has a lot of C & B vitamins, electrolytes & magnesium.

[chartist]

If it actually is dyskinesia instead of dystonia, sometimes low sodium and low chloride can be a causative factor as outlined in the following study which showed a correlation between low sodium and low chloride related to instances of dystonia, but your doctor would have to check you to determine if that is the cause. Here is a link to that study:

ncbi.nlm.nih.gov/pmc/articl...

If it is not dystonia, but rather just stiff muscles, yes, pain relievers may have little if any effect. Many people find relief using magnesium chloride oil just sprayed on topically and rubbed into the affected area. It relieves pain and relaxes the muscles very quickly and it is absorbed through the skin to add to your total magnesium intake. It also works fast and well for cramping in the arms, legs, hands and feet and is a handy thing to keep in your medicine cabinet. Here is a link to a basic and inexpensive product :

amazon.com/Magnesium-Oil-Sp...

You can also use one of the more bioavailable forms of magnesium tablets or capsules such as magnesium glycinate or magnesium taurate. The taurate form has also shown itself to target the brain which would be of importance for PWPs and other neurodegenerative diseases.

Art

[Astra7]

Try taking magnesium tablets. Also excercise and stretching should help. Seems like you are taking a lot of meds so I would go back to the neurologist and see if there are some adjustments that can be made.

[koshca]

Medical marijuana is good for pain.

[park_bear]

Are you taking any form of levodopa? That can relieve the problem.

[Kaykaykay123]

Yes it's my main symptom.I take muscle relaxents and use heat pads.Also neck exercises help

[JAS9]

I've had a lot of success with Qigong and gentle massages of my neck, foot, and toes. Many PwP think that dystonia is just another version of dyskinesia, and it's not (at least not in every case). The difference seems to be that things like massages and magnesium might help dystonia, but not dyskinesia. Here's a book excerpt about acupuncture and massage being used to relieve dystonia:

Up until the last few years of the 20th century, anything related to nerves was considered immutable. It was a "fact" that nerves could not heal or regenerate. After any problem was announced to be a nerve problem, the doctor could wash his hands of it.

Western medicine has until recently stated that all dystonias are due to nerve damage and are therefore incurable. However, osteopaths, chiropractors, and students from many schools of alternative medicine, including Tui Na practitioners, are trained to restore structural components and re-stimulate numbed muscles, thereby curing dystonias. In my own practice, those patients who have been told that they have “permanent brain damage” causing their dystonias have been understandably miffed when their "permanent” condition responds to massage.

[TiagoH in reply to JAS9]

what is the book?

[JAS9 in reply to TiagoH]

Once Upon a Pill, page 81 footnote: pdrecovery.org/wp-content/u...

[TiagoH in reply to JAS9]

Thanks!

[janers]

I’ve also found relief from acupuncture and deep tissue massage. Stretching and exercise also helps. Best wishes!

[Smythy]

Hi Tilly I have dystonia of the face and lips there is nothing that can be done for it I hope this has been of help Pamx