Coimbra Protocol

[38yroldmale]

Much of this content is cut and pasted from other responses. In NO WAY am recommending doing what I am doing. If not done correctly under a care of a Coimbra trained doctor could be harmful. This is my summary of what I understand it to be. It was worked wonders with MS/Crohns.

The objective of the Coimbra protocol is to lower your parathyroid hormone To the lowest possible range. The only way to do that is with vitamin D at high doses. They work as inverses Of each other. High D means lower parathyroid levels. It’s proven your parathyroid regulates your immune system.

I am doing the protocol under the supervision of a doctor. I get me blood checked every 2 months. My grandfather, father, and I have had Parkinson’s. My only brother has Crohns. My mother had MS. Both me and my brother had DNA tests that said we are pre disposed to have low vitamin D. Modern medicine has failed my brother. His last option was stelara, doesn’t help. He hasn’t had a regular bowel movement in 2 years. After 1 month on the protocol he had about 1/2 normal with no other changes. He is feeling slightly better, which is awesome for him.

I’ve had low vitamin D sores since I was 18. They were always there but got smaller in the summer. From Utah, long winters. My doc said to go out in the sun more rather than any supplements. Seems strange that I got Parkinsons at such a young age?

This protocol but It made sense to me especia when it worked for my brother and my vitamin D sores.

My parathyroid Hormone was out of sight high and my vitamin D was very low. 3 neurologist and Regular Doc said nothing about my D.

And have life to live. Modern medicine has nothin but pills that make me sick. I am closely monitoring my blood, but I feel like I don’t have Parkinson’s lots of the time. (Other than Gait) I am being a Guinea pig, but I’m going to go with it. All my blood work has checked out so far, and I’m not a massive high doses. If it works for me, I will encourage it. I know it sounds crazy, but why is it the further away from the equator, the higher incidence and severity of autoimmune diseases? Around the equator, there are very few cases compared to the rest the world. Since the advent of sunscreen use, the number of autoimmune diseases has also risen substantially. We evolved as nudists in the sun. It is also I believe a product of our lifestyles as well. We spend a ton of time indoors, eat Fast Food constantly ( me especially) drink more soda ( me too) much more sedentary lifestyles. Exercise has been proven to slow progression which means would most likely help to protect against.

My genetics counselors told me that your genes load the gun, and life Experiences pull the trigger. It’s complicated but I’ve had very traumatic life altering events happened in my life the last 4 to 5 years. I think I would eventually have gotten Parkinson’s, but my lack of vitamin D supplements, life experiences and stress has made me get it at a much younger age. My dad and grandfather got it much older in life. They also had different lifestyles, less stress and such.

I truly believe the only way they can ever cure some of these life altering chronic Is fixing or altering our genes. Parkinson’s is so complex and many different diseases wrapped into one, I don’t believe it ever will be a cure all fixing.

If I continue to monitor my blood work, continue with the protocol, both b1 and the vitamin D, exercise, maybe I can slow down or possibly freeze progression. At least in the meantime, it leads to hope, which leads to a much better quality of life. Modern medicine says take this pill and hope for the best. Nothing slows it down

Maybe I’m an idiot for trying. But today it makes my life better? I would never recommend it to someone else because it might hurt me in the long term? But to me if there is a chance that it could work, it’s worth A try.

Modern medicine wants to fix you one way. With a patentable artificial Drug that they can make a fortune off. I can’t blame them, their objective is to make money. They haven’t found a cure, or in my opinion they are not close to a cure. People I tell think there has been a lot of progression in a cure. They have spent a lot of money trying which is great. If they had the cure today, it would probably take a decade before it came to market. A decade of progression. A decade of going downhill. I know today I am much better and feel like something is working. Sorry about the novel

Dr. Coimbra is no dummy. He was a large part of the human genome project that has been basically ignored . He wants to help people. He doesnt care about getting rich. Could it be that simple?

[ConnieD]

I find this very interesting, I never heard of it before. I have always felt that my PD has some relationship with autoimmune disease. Are you in the U.S.? Was it difficult to find a dr. that was experienced in the protocol? Thanks, Connie 😊

[Blackfeather in reply to ConnieD]

If you go to amazon.com and search "high dose vitamin d " under books you will dr. Coimbra's kindle book that has his vitamin D protocol. Plus other books by doctors who have modified protocols using High dose vitamin D for most auto immune illnesses. There is a Spanish doctor who's vitamin D protocol I like that you may want to look into.

[ConnieD in reply to Blackfeather]

Yes I appreciate the information, have you tried the protocol? Yes I would like to look into this more and what is the Spanish Drs name please. Autoimmune problems run in my family even my son until the age of 2 had autoimmune neutropenia. Thankfully he outgrew it. My father had raynauds, my mother and sister have hishimoto thyroid which is autoimmune. I have the mthfr gene which is supposed to be related to autoimmune. Thank you! Connie 😊

[Blackfeather in reply to ConnieD]

Tiago Henriques. 'how not to die with true high dose vitamin d therapy'. NOT the best title he could have chosen. But he describes how to do Coimbra's protocol with a few added safety measures.

[ConnieD in reply to Blackfeather]

Thanks!

[38yroldmale in reply to Blackfeather]

One thing to remember is that protocol is a long term solution. It may take a long time to see any results. Just like it took you a long time to get parkinsons.

[38yroldmale in reply to ConnieD]

Connie

Not at all. You can do it over Skype. Dr Pinkleton from Seattle Washington.

[ConnieD in reply to 38yroldmale]

Thank you 38!😊

[park_bear]

This protocol makes perfect sense for you given that your parathyroid hormone was out of sight high and your vitamin D was very low. Did your genetic testing look for mutations in the LRRK2 gene? If you have that, there is evidence adenosyl B12 helps.

[38yroldmale in reply to park_bear]

I was tested for that Gene and it tested negative. Thank God for my kids!! However my neurologist said and lots of the genetic testing an actual person doesn’t always look at the results. It could be near the end of the spectrum, or I have terrible luck especially with my brother having Crohn’s disease. As you’re probably aware, it causes both Crohn’s and Parkinson’s.

I was accepted to be part of the DNL-201 Phase 1 trial. I was the first of 36 patients to have this drug. It was a very involved study that I was willing to participate because this drug was developed, along with the Michael J Fox foundation to Inhibit the Gene malfunction. I think I have this Gene even with the negative results. So does as my neurologist

After flying to California from Utah. Spending two days getting tested my last test was an EKG. I found I have Wollf Parkinson White syndrome. Completely unrelated to Parkinsons other than the name? When he told me that I thought I had something to do with my diagnosis, but it’s a complete coincidence. I wonder if there’s any other health issue with the name Parkinson in it? It disqualifies me from the study. It’s almost funny but not really.

[ElliotGreen]

Thank you for this post.

[38yroldmale in reply to ElliotGreen]

Your welcome. I’m not an expert by any means but have studied a lot about it. If you have any questions you can contact me and I’d love to talk to you. There’s something to it.

[Davidc555]

Hi 38yearoldmale

You can join the Coimbra Facebook page and follow their posts. Very helpful showing how people are doing on the protocol.

Best wishes

davidc555

[Astra7]

I was surprised to test low Vit d as I live in Australia and play tennis in the sun with no sun screen around 3 times a week. Apparently sometimes your body just doesn’t soak it up and supplements are required.

[chartist in reply to Astra7]

Astra7,

A fairly common occurrence as our skin cholesterol declines as we age and can no longer interact as easily and readily with UV rays from the sun in order to produce adequate 25 OH (d). Supplementing is almost a given for seniors in order to reach well into the reference range of 30~100 ng/ml. Given that it is now known that 25 OH (d) is active in its own right in humans, supplementing seems sensible!

Art

[TL500]

I also found Jeff Bowles's book which has a lot of positive reviews of people who followed his way and got rid of long term health problems or improved a lot.

Then I also see quite a few negative feedbacks which got "attacked" by others and these viewers reckon it's the author Jeff gets under diffrent names to attack them. What do you think?

amazon.com/Miraculous-Resul...

[38yroldmale in reply to TL500]

I think it make a lot of sense. Modern medicine is controlled by pharmaceutical companies. There is no one really looking at vitamins. With cattle, they often do blood test and supplements things that are lacking. My Genes show that I have a hard time processing vitamin D. My mother had MS, only brother has Crohns, Me my dad and grandpa have had Parkinson’s. Vitamin D controls and regulates the imune system. Our lack of vitamin D has made our immune system attack my brothers guts, my dad, grandad and my mine brain cells and my moms Brain lesions. It’s hard to say but Parkinson’s It’s still a long ways away on the chai it’s still a long ways from a cure. Really what progress has been made? This makes perfect sense to me

[38yroldmale]

I think it make a lot of sense. Modern medicine is controlled by pharmaceutical companies. There is no one really looking at vitamins. With cattle, they often do blood test and supplements things that are lacking. My Genes show that I have a hard time processing vitamin D. My mother had MS, only brother has Crohns, Me my dad and grandpa have had Parkinson’s. Vitamin D controls and regulates the imune system. Our lack of vitamin D has made our immune system attack my brothers guts, my dad, grandad and my mine brain cells and my moms Brain lesions. It’s hard to say but Parkinson’s It’s still a long ways away on the chai it’s still a long ways from a cure. Really what progress has been made? This makes perfect sense to me

[TL500]

What do you think about the negative feedbacks?

[38yroldmale in reply to TL500]

I know the risks involved. That is why it has to be done under the care of a physician. I take blood tests every 2 months, bone scans at first and then periodically, a urine Calicum test to check that a patient is passing the Calicum. I actually think it’s a bad idea to do it On your own like the book states. I am basing my Hope on Doctor Coimbrã, a very smart neurologist that was part of the human genome project. His experience with that is actually what helped him develop his protocol.

This author seems unprofessional as the reviews state. I haven’t read the book but even by the fact he doesn’t tell you to do it under the care of a doctor shows his problem.

However, that doesn’t mean it doesn’t work. It’s for sure reckless, which I don’t approve.

[TL500 in reply to 38yroldmale]

Thanks.