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Kipper1285 profile image
10 Replies

Has anyone else have side effects using rytary. Since i started it (3-4weeks ago) I am falling left and right. I haven’t had too much trouble in the past with my balance. Another problem is weakness .. I’ve gotten so weak in a short period of time. Also , is it normal 2hrs before the next dose to begin feeling pd symptoms that begin to worsen to the point where 1/2hr to 45” out I have to sit with my mouth covered (drooling)trembling.for an hr or more. Is that what they call ‘off time??

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Kipper1285 profile image
Kipper1285
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10 Replies

It sounds like you need to adjust the dosage... What was the form and dosage of the C/L you were you taking before Rytary?

Enidah profile image
Enidah

Sounds definitely like off time to me. I agree that you need to adjust the dosage it sounds like you’re not getting enough.

JAS9 profile image
JAS9

Switching from Sinemet or other C/L to Rytary isn't as easy as you might think. Rytary's L-dopa isn't absorbed as efficiently, so it's not a 1-to-1 change. In general, you have to take more L-dopa in Rytary to get the same effect. There's a web site that helps convert, but your doctor should be aware of this. If you need the site, I can find it for you.

PDGal4 profile image
PDGal4

I experienced balance issues when I switched to Rytary from CL, over a year ago. Fortunately not falling, but definitely loss of balance. I think dyskinesia-related. It does sound like your dosage is off. Don’t know if you are taking too much or too little. What dosage were you on of C/L and what dosage of Rytary are you taking now?

Larkr profile image
Larkr

Severe aching joints was what my husband experienced on Rytary. He tried to switch to it 2 times and both time he had the same joint pain.

Alemanda profile image
Alemanda

It made me dizzy and very nauseous.

tarz profile image
tarz

I'm convinced, that is a medication I don't need to add to my symptoms, and another good reason to avoid becoming the guinea-pig-experiment of some neurologist.

Sedona profile image
Sedona

I had horrible nightmares when on Rytary.

Dajudge profile image
Dajudge

Hello--I am having some of the same problems with Rytary---1. feeling weak and my balance has gotten terrible.--2. I feel like a zombie every sfternoon lasting until i go to bed.---some dyskinesia

Sam Johnston

steveclary profile image
steveclary

! have been falling all over, diving for chairs, just recently"freezing" started, I am having challenges just standing up. I told the Doctor and he increased my dosage. Now I am shaking badly.

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