Has anyone been to Russia and had this treatment, or knows about its success rate.
From what I understand its treating the trapezious muscle with specific severe targeted pain, which reboots the brain and stops the Parkinsons. LOts of testmonies on the Russian website, but none in English. The trapezious muscle is attached to the scapula, which would explain why so many people's PD starts with a frozen shoulder, mine included. Mine also started with severe aching in the trapezious muscle, before symptoms began.
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Strangely enough I've had frozen shoulder (on left side) in 2013 and in 2016 started having hand tremors on the same side. I was wondering if there is a connection....
I have a lot of commitments right now but when find time I will listen to the website testimonies (I am fluent in Russian) and may contact clinic to obtain more information. Will keep you posted.
Oh that is awesome that you are fluent in Russian, please when you have time let us know what is being said on those testimonies. Ive sent them an English message asking for info, so will see if I get reply. I have a girlfriend with MS who travelled to MOscow and was successfully treated and the progress of her condition was halted, so they definitely know what they are doing.Yes in 50% of PD cases , it starts with a frozen shoulder Ive been told.
Hi back to you, from New Zealand, we are in the middle of winter here, Ive been mainly hibernating and dreaming of travelling to Switzerland for Focused Ultrasound Therapy, or Russia for RANC therapy. Nice to dream . . .
Interesting for sure, my right shoulder is pulled forward from digging in the garden to much, my neck is tight on both sides, and my trapesious muscles definitely have tender pressure points.
Thanks for responding, as soon as my meds wear off, I feel like there is a heavy weight on the back of my neck and my neck becomes stiff and sore. Rebooting the brain by shocking the Trapezious muscle sounds like a sensible theory to me. I just have to find somone willing to do it.
Yes, so far I've watched about 10 cases of PwPs but have not seen any dramatic improvements such as the online article states "there are often such striking examples of improvement that you cannot believe your own eyes".
There were cases where patients claimed to have reduced amount of levodopa (in one case from 8 to 3 tablets/day), also to have less rigidity and improvement in rising from the seat, walking and turning in bed. However, in my opinion if there were any changes - they looked like a very slight improvement in rising and walking. Have not noticed reduction of tremors, although some recordings were poor quality and may be that was a factor.
There was no testing scale - the doctor asked patients only to rise from a chair or sofa, walk and some to turn around. Many patients claimed to be more relaxed after the procedure, however one stated to feel worse after 2nd treatment.
According to the doctor patients usually experience some kind of a crisis - temporary worsening after a few sessions of shots (usually after 3-4 days into the treatment), which he considers to be normal as according to him the nervous system has been "stirred up" and takes time to settle down. He recommends to repeat treatments every few months and if someone can't visit his clinic due to long distance, he suggests to find a local doctor who would administer shots. He says there are doctors in other cities who are catching up on his method.
So, this is my impression - hope I got it right as some recordings were not the best quality, some patients had speech issues (soft voice), some were talking fast and there were few from former soviet republics speaking with local dialect.
I'll try to look for russian forums to see if there are any PwPs who had this treatment to gain more information, however, it may take me a while to get to it as I have family coming out of state for a visit and have a lot to do at the moment.
Faridaro, you are a star, really appreciate you taking the time to watch so many videos and report back, thanks for bridging the language barrier and letting me know what is approximately being said. Be really interesting to learn where else this treatment is being used also. I wish you a happy time with your out of state family.
Thank you for kind words! However, I am also interested to find out what this RANC is all about and appreciate you mentioning it. Not sure yet how effective it is as the website probably posts only success stories which so far didn't make much impression on me.
the article says that this treatment is for people with Parkinson's symptoms, who did not have any effect from sinemet, and it claims it is 95% of all patients. It means if Sinemet helps you are in the 5% of those whom this treatment won;t help
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