The many symptoms of PD: Hey gang, a while... - Cure Parkinson's

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The many symptoms of PD

Enidah profile image
19 Replies

Hey gang, a while back somebody posted a link to an exhaustive list of PD symptoms. I can't find it in any of my folders or on the site and I would love to have that link again. I thought I'd have it tattooed on my arm so people can read it (not really).

I do grow weary of trying to give people a picture of how extensive this disorder is. They see me looking relatively normal and think all is well. For most people that's fine but sometimes I want to crack that veneer with a list of reality and that was a darn good list. I hope someone remembers it.

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Enidah profile image
Enidah
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19 Replies
lempa_nik profile image
lempa_nik

For a Symptoms List copy - E-mail to the below address with 'Symptoms' on the subject line.

Created by: David A. Bunch - macbunch@hotmail.com - 949 - 933-3198

If Mr. Bunch does not respond, then send me your email address and I will send to you the latest version I have.

Enidah profile image
Enidah in reply tolempa_nik

Thank you! I will give it a try.

in reply tolempa_nik

Find under FILES in facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600...

Document title: 3 Pg P D Sym 11 5

Enidah profile image
Enidah in reply to

Thank you Roy. I got it.

Here is a fairly comprehensive list of 80 different symptoms that members have posted as being improved through the addition of HDT to their existing PD regimen :

healthunlocked.com/parkinso...

Art

Enidah profile image
Enidah in reply to

That is another good list. Thank you!

JohnPepper profile image
JohnPepper

Hi Enidah. I posted my list a long time ago. Here it is again:

Appendix 1 Details of My Symptoms …………………

Bad Posture and Limping ………………………………

Biting the Inside of My Mouth and Tongue ………..

Clumsiness ………………………………………………

Confusion with Left and Right Sides ……………….

Constipation …………………………………………….

Depression ……………………………………………….

Difficulties Swallowing and Choking ……………….

Dribbling …………………………………………………

Dry Mouth ……………………………………………….

Falling Asleep During the Daytime………………….

Fatigue ……………………………………………………

Flexed Calves, When Sitting ………………………….

Flexed Toes, When Driving …………………………..

Foot Cramps …………………………………………….

Frequent Night-Time Urination ……………………..

Frequent Urges to Urinate ……………………………

Hands Freezing in a Flexed Position ……………….

Inability to Concentrate ……………………………….

Inability to Handle Conflict Situations ……………..

Inability to Maintain Balance …………………………

Inability to Manipulate My Fingers …………………

Inability to Multi-Task…………………………………

Inability to Walk on Uneven Surfaces ……………..

Inability to Write Properly ……………………………

Insomnia ………………………………………………..

Intermittent Memory Loss …………………………..

Involuntary Movements (Dyskinesia) ……………..

Irritability ……………………………………………….

Itchy Head and Torso ………………………………..

Lack of Awareness ……………………………………

Lack of Facial Muscle Control ……………………..

Lack of Feedback ……………………………………..

Lack of Muscle Co-ordination ……………………..

Legs Freezing ………………………………………….

Loss of Sense of Smell

Mood Swings …………………………………………..

Profuse Perspiring ……………………………………

Respiratory Tract Infections ……………………….

Restless Legs at Night ………………………………

Rigidity …………………………………………………

Social Withdrawal …………………………………….

Speech Irregularities ………………………………….

Tremors …………………………………………………

Uncontrollable Emotional Occurrences …………..

Watering Eyes …………………………………………..

ddmagee1 profile image
ddmagee1 in reply toJohnPepper

How did you know that I have had all those symptoms, Mr. Pepper? ( Being humorous, of course.)

Enidah profile image
Enidah in reply toJohnPepper

Thank you John.

JohnPepper profile image
JohnPepper

I have X-Ray vision and know people like to copy me.

Despe profile image
Despe in reply toJohnPepper

Bless your heart, John. Are most of your symptoms gone now?

JohnPepper profile image
JohnPepper in reply toDespe

Yes! The only two symptoms I have to live with are constipation and insomnia. It is 5:30 am and I have been up since 4:45 am and am working on my laptop until it is light enough to walk. I will finish my walk just after 7 am and take my wife a nice cup of tea and get cleaned up and enjoy a nice day. Life has been good for me since 2002, when I finally stopped taking Pd medication and have continued to walk fast every second day, other than when I was unable to do so due to other health problems. I am getting on for 85 and live a full, healthy life.

Despe profile image
Despe in reply toJohnPepper

John,

You never cease to amaze me! You are an inspiration to me and hope to all PwP. Wishing you to live till at least 100!

JohnPepper profile image
JohnPepper in reply toDespe

Hi Despe. I don't really want to live to be 100 unless I am still bodily fit and I have all my marbles. e have one lady here in our retirement village who just turned 107. She still has all her marbles and until two years ago still did a brisk walk every day. Her only problem is, "How does she get away from all this"

Despe profile image
Despe in reply toJohnPepper

John, There are always exceptions to the rule. :) You sound very intelligent and physically fit, you won't have a problem reaching 100! :)

Despe profile image
Despe in reply toJohnPepper

John,

Were all these PD symptoms or some attributed to the medication you took for 8 years, believe MAO-A inhibitor?

JohnPepper profile image
JohnPepper in reply toDespe

Hi Despe. They were all Pd symptoms. The only side effect of the Selegiline was high blood pressure, which had to be closely monitored.

Despe profile image
Despe in reply toJohnPepper

I am seriously thinking to have him start Xadago, the newest MAO-B inhibitor. Afraid of the side effects though, especially BP as he had cardiac ablation back in 2011-12 due to arrhythmia. His BP is great now without any meds. He was taking BP meds for a while before and after ablation with a little success. He only takes supplements now for BP, Krill Oil and Turmeric and really worked. His doctor took him off BP meds. He wondered why his BP is normal (usually 115-125/68-70), but refused to accept that that is due to supplements.

JohnPepper profile image
JohnPepper

Hi Enidah. If you work hand in hand with your neurologist you should be able to control it properly. I was on the Selegiline for 8 years befoe I had any BP problems with it.

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