Seeking help in continuing B1 process

[Natlp2]

I'm about ready to give up on this protocol. I would appreciate suggestions from those of you who have had success. I was able to speak with Doctor C shortly before he was taken ill. He suggested I start at 1.5 G for one month, then if no effect move to 2 G which I did. Then I had no more contact with the doctor. I was on two grams for 10 days. Then I update to two and a half grams for 5 days. I think it was causing headaches and worsening of my gait freezing but to be perfectly honest I'm not sure if I was just having bad days or if it was the thiamine. So I stopped for 5 days completely and started back up with 500 mg for two weeks. Then up to to 1 gram for 10 days. That takes me up to today.

In all that time I never noticed any Improvement and was not really sure about the bad effects. Any thoughts would be appreciated.

Bottom line: What I'm asking is, judging by my adjustments so far, would you suggest I increase or decrease or give one of the previous dosages more time?

Thank you.

[Gioc]

What is your most hated symptom if I can ask?

[Natlp2 in reply to Gioc]

It's a toss up between freezing gait and apathy

[Gioc in reply to Natlp2]

I understand you, the PD is just ugly it would seem to always win in the long run, but maybe we have a little hope here with the B1. From your posts I see that you are a person who does not give up easily, so apathy does not spiritually belong to you. IMHO don't let b1 go away, you've tried various doses and intuitively you know which is the best dose for you. Don't forget to feed yourself well, that is a well balanced diet with fresh vegetables, carbohydrates and proteins, but not excessive. You can suspend b1 for a week or more if you think it is excessive or unbalanced. The goal is to stabilize the slow progression and have a win over PD (use Thiamine HCL) and maybe this takes a while how you can se here.

[Natlp2 in reply to Gioc]

Thank you

[Erniediaz1018 in reply to Gioc]

Wow GIO you give great encouragement 💞. Very caring and loving insight. Thank you

[Gioc in reply to Erniediaz1018]

Hi my friend Erniediaz, what counts is the result, you'll see me write here as long as there are positive results, not more.

[Hidden]

More time. If you fail to make it right, your looking at advance stages of Parkinson.

[Natlp2 in reply to Hidden]

More time at each doseage? How long?

[Hidden in reply to Natlp2]

Until you feel good

[park_bear]

My experience was a high dose was good for the first few months. Since you seemed to tolerate 2g, work your way back up?

[Natlp2 in reply to park_bear]

Thank you

[Jumex2017]

It’s starange he asks you to start with a lower dosage and increase it. Normally he would start with a dosage according to your weight and then decrease it. Frankly my husband started with 3 g and I found he was getting slower . Then we stopped for 2 weeks and lowered it to 1.5g. The way to test it was the pull test I don’t see much difference but he could walk a little longer distance than when he did not take it . When he did the pull test he could step back 1-2 steps. That’s when dr c said it was the right dosage

[Natlp2 in reply to Jumex2017]

thanks, but i have always done well on the pull test so i don't think it's a good indicator for me. yeah, that's how Dr C told me to start. wish i hadn't lost contact with him.

[alaynedellow]

I have found it generally takes few weeks at each dose of B1 to have effect good or bad. 8 months in and still tweaking doseage! Perseverence. Keep a journal of effeects as hard to remember what improved etc so you can rationally read over them. Take mannitol to knock apathy out of touch i use syncolein.com- i swear by it.

[Natlp2 in reply to alaynedellow]

Thank you

[LindaP50]

My husband is on levodopa. He does not have tremors. Did have freezing gait. Now freezing gait sneaks out when he doesn't take meds in a timely fashion. What did STOP the freezing gate was Full Spectrum Hemp Oil.

[Natlp2 in reply to LindaP50]

Thank you

[TSonmez in reply to LindaP50]

Hi, how often does your husband take the CBD oil?

I bought my mom oil but she doesn't like to swallow it.

So now I have capsules for her from Lazarus Naturals.

Right now I have her on one each night to help her sleep.

[LindaP50 in reply to TSonmez]

Once in the morning, take the dropper and put oil under tongue. He started with a 1/2 dropper full for a week then went up to a full dropper.

I take a 1/4 dropper in morning - feel I get energy.

[TSonmez in reply to LindaP50]

Thank you, I will have my mom start taking it in the morning and evening.

[LindaP50 in reply to TSonmez]

Also check out lucefarmvt.com/shop/full-sp...

[Chicafromchitown in reply to LindaP50]

Does the CBD oil helps in anyway with your PD symptoms, besides energy? I just started it this week, I am hoping for good results, also what brand are you taking? Thanks 🙏🏽

[LindaP50 in reply to Chicafromchitown]

We use Full Spectrum Hemp Oil purchased from theprettyhotmess.com

[Chicafromchitown in reply to LindaP50]

Thank you, I will check the site

[Poss in reply to TSonmez]

Planning to get on with CBD oil. May I know the potency of the tablet given to your mum?

[Leylaleyla in reply to Poss]

It is a 50 mg capsule of cbd.

[Poss in reply to Leylaleyla]

Thank you.

[Jumex2017 in reply to LindaP50]

Can u buy this anywhere? Is it to be taken orally

[LindaP50 in reply to Jumex2017]

We use Full Spectrum Hemp Oil purchased from theprettyhotmess.com

I'm sure there are other places to purchase this oil - just make sure the website is legit.

Do a search on hemp oils -

[LindaP50 in reply to Jumex2017]

Here's another website for Luce Farm

lucefarmvt.com/shop/full-sp...

[Erniediaz1018]

I say give it more time as Roy recommends. Like Gio said I would keep an eye on my greatest symptom which is apathy as well and keep going on the peak dose like park bear until that symptom is relived. I've been on b1 for about eight months and apathy is not there for me anymore,

[Natlp2]

Thank you