Botox foot dystonia

[rebtar]

Ir's been a few years from what i've seen here, since there's been a discussion of foot dystonia.

FD was not my first symptom, but it was the first really bothersome one, before C/L.

Now i get it first thing in the am, and sometimes mid afternoon, or before bed -- those are times my dopamine is lowest.

I'm wondering if it's a good or bad idea to start Botox injections before this gets worse?

There was one post where Botox made the foot dystonia worse. Some where it helped.

I'd like to hear experiences, pros and cons...

[Juliegrace]

I don’t think it helped me much. My FD was so bad before DBS, I felt like my right ankle tendon was going to snap. I had Botox twice this past year and it did not make enough of a difference for me to continue it. DBS has really helped with my foot dystonia though.

[BlockRuys]

It did help me quite a bit. Find a good doctor and try it, make a video explaining what you feel and showing the symptom which will help. Worst thing that can happen? Loss of function but it will return in 3 months, no side effects.

[rebtar in reply to BlockRuys]

How much loss of function?Could you still exercise?

[BlockRuys in reply to rebtar]

None for me. I wasn’t able to exercise before, now I am. Start low dose and find an experienced doc.