Ritalin for extreme fatigue

[Kwinholt]

Does anyone of my friends out there have any information or actually tried a low dose of Ritalin for extreme fatigue with our PD? If any one has experience with this , can you tell us how it helped or didn’t help? Thanks, Karen

[mannp]

I tried it but wasn’t a lot of help. I was switched to Concerta which did help. I had to go off because of heart issues not associated with the Concerta. I now take Ingrezza for the fatigue. I’m surprised my insurance covers it because it is expensive. It is $5970 for 30 capsules, a one month supply.

[Kwinholt in reply to mannp]

Thank you for your response. K

[aspergerian13]

I used methylphenidate for several years, along with c/l and amantadine. Generic Ritalin was helpful. As my pd advanced and my episodes of postprandial hypotension worsened, I have stopped (at least for now) the methylphenidate. All three drugs are induce vasodilation. Amantadine and methylphenidate are (to some extent ) norepinephrine reuptake inhibitors - which for some of us may be helpful. See postings about locus coeruleus.

[LAJ12345]

My friend’s child was on Ritalin for adhd which didn’t help him much then he went on a trial run by Canterbury university on micronutrients. He takes Hardy’s daily essential nutrients and is now a completely different child.

So I trialed my husband who has Pd on the Hardy’s product as he was extremely unwell at the end of last year and within 3 days he was feeling 10 times better and now 6 weeks later he has lots of energy , no anxiety or fatigue and is busy doing jobs around the house that he hasn’t been able to for years. It is reasonably expensive but it replaced a lot of other supplements he was taking so when you look at the list of ingredients it has and the difference it makes it is well worth it.

hardynutritionals.com/produ...

[Kwinholt in reply to LAJ12345]

Thank you so much . I will look at that. I am a vitamin taker but if this has more that I need , great! Is your husband on PD meds as well? Karen

[LAJ12345 in reply to Kwinholt]

He is only taking 1 sinemet per day but says it doesn’t do anything for him. He is prescribed 2 x 3 per day but has not taken this many. He hates the way they make him feel.

He was taking most of the vitamins individually in the same ratio as the Hardy’s but I couldn’t find the trace minerals separately so it might have been the minerals that we missing before or one of the proprietary ingredients that make him feel better.

I do wonder whether it is a general insufficiency of nutrients causing a lot of symptoms for people, and each person may be missing different things depending on their diet and genes. So b1 seems to help many people but maybe Dr Constantini was treating mainly Italians with similar diet and genes and b1 may be their deficiency. He says other nationalities seem to need less so perhaps their deficiency, may be another nutrient? I think when you are healing you may need one thing, then as you top that up you need less and another thing runs out and is the next limiting factor. Anyway I am not sure if that is correct but I think it is worth a try for people, especially if they are in early stages.

[LAJ12345 in reply to Kwinholt]

Ps I was reading your profile and see you are an ultra runner. I think PD is common with ultra athletes so it possibly could mean one or another nutrients run out when you are pushing your body to extremes? You are burning a lot of energy and sweating out a lot of electrolytes so it makes sense you might need more of everything than a light exerciser? If you eat a lot of carbs for energy I think you can deplete b1 and probably other vitamins too. Hardy’s has a huge amount of vitamins and it scared me a bit to start with but ring their help line and talk to a product specialist and they will advise you.

[Kwinholt in reply to LAJ12345]

Thank you so much. I did look at all their products on line . And I do take a lot of all that right now but maybe their ratio is better. I’m am one of the unfortunate ones the B1 therapy didn’t work for. And I do take 3 different PD meds and understand what your husband means about there side effects and how they make you feel but it has helped with my dystonia and has enabled me to continue running . If I don’t take senimet I freeze into a position and can’t move . That’s how mine started not being able to walk or run . I appreciate all your input and information . Karen

[LAJ12345 in reply to Kwinholt]

Yes I think it is either their ratio is better, or they have traces of crucial elements that are missing from food and the other supplements, or the other brands haven’t got what they say they have in them, or have other ingredients that aren’t good. Let me know if you try it and whether it helps. Good luck!

[horsplay]

Adderall helps me. I take the capsules not the ir version.

[Kwinholt in reply to horsplay]

Thank you