Are neupro patches safe?: My doctor has... - Cure Parkinson's

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Are neupro patches safe?

doddle42 profile image
7 Replies

My doctor has prescribed rotigotine transdermal patches to help with body movements.

However, the list of possible side effects is horrendous.!

I would be grateful for advice.

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doddle42
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7 Replies

I have used. Don't fear the patch. Have even less fear and greater positive results with high dose thiamin HCL. facebook.com/groups/2322600...

Parkinson's Relief, Questions and Answers

park_bear profile image
park_bear

Neupro / rotigotine Is a dopamine agonist. Adverse effects are common and can be devastating. This includes impulse control disorders such as compulsive gambling, sex, eating, or shopping. Some seniors have lost it all due to compulsive gambling. Some people with dopamine agonist caused impulse control disorders find they are unable to get off of them. This is known as dopamine agonist withdrawal syndrome. There have been lawsuits over these matters.

Aside from compulsive eating, weight gain is another adverse effect that has been noted.

In addition, 30% of patients show signs of orthostatic hypotension upon their very first dose. This is a fancy term for loss of blood pressure upon standing. It can result in fainting and uncontrolled falls, and can be disabling.

In my opinion dopamine agonists should not be touched until you are maxed out on levodopa and other meds.

parkie13 profile image
parkie13

Plus, if you are over 65 they are not recommended for that age bracket.

Toogood profile image
Toogood

Made me sick...

Motherfather profile image
Motherfather

hi doddle well i take the patches my self im wearing one now they come in 4 strenght 2 mg 4mg 6 mg and 8 mg.i take the 8 mg some times i dont take them to see if they make a differents,to be honest im thinking about stopping them as they dont make a big differents to me.but at least you can start the 2mg ones i cant see them hurting you.give it a go and see what happens.im 72 no weight lost, no weight gain no gambling problems.regards.

PDGal4 profile image
PDGal4

I have been on the Neupro patch for several years. I was hesitant at first, because I'd had a bad experience (fatigue and nausea) with Mirapax, an oral dopamine agonist. But the doctor said she'd titrate me very slowly, which she did, starting at 1 mg as opposed to 2 mg, and increasing the dosage slowly. I got up to 8 mg, which was way too high, and have gone back and forth with 4 mg and 6 mg dosages. I am on 4 mg per day now; at a higher dose, my legs feel very heavy in the mornings.

I have known people who've gained weight on Neupro; I did not. I have mixed feelings about dopamine agonists, but then I do about all the meds. I take Rytary (time released C/L) along with it. It's supposed to smooth out dopamine delivery, but I have off times anyway. I did recently read not recommended over age 70. But at least in my experience with the latest trained movement disorder specialists in the US, the use of a dopamine agonist along with C/L is the newest treatment recommendation,

Jlloy5 profile image
Jlloy5

I’ve been on various doses of the Neupro patch for 2 years, and it has gone very well. The patch has vastly improved my ability to move and perform simple tasks such as brushing my hair and getting dressed. At 3 mg, it restored my ability to drive without c/l. I am currently on 6 mg, but am working towards 8 to see if it would affect my tremor. The only side effect so far is an occasional (1x every few months) drop in blood pressure. I had previously been on mirapex, but suffered severe side effects. The patch has been life changing for me.

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