Frequent and Urgent Urination: Has anyone... - Cure Parkinson's

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Frequent and Urgent Urination

gkgos profile image
34 Replies

Has anyone found an effective treatment for frequent and urgent urination?

My sleep is being effected, difficult to keep properly hydrated because the water just goes straight through me. I think my constipation is worse because i avoid drinking water because of the frequent and urgent urinating.Thank you for any suggestions.

Regards

Glenn

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gkgos profile image
gkgos
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34 Replies
park_bear profile image
park_bear

You should get checked out for possible urinary tract infection. If it is not that there are medications can be used to reduce the urgency.

gkgos profile image
gkgos in reply topark_bear

Thank you I will go see a urologist ASAP

bassofspades profile image
bassofspades

3 thoughts come to mind.

Are you taking thiamine? A higher than necessary dose can cause increased urine output, i have found.

Or, consider enlargement of the prostate due to bph or other causes, if you are male. Frequent small amounts of urine with urgency is caused by the enlarged prostate encroachimg on the bladder, causing it to sense that its full.

Lastly, have your sugar checked. Frequent urination could be a sign of diabetes . A dipstick test can confirm sugar in the urine.

A visit to your friendly urologist could be the next step. Keep us posted.

gkgos profile image
gkgos in reply tobassofspades

I think you are right I will go to an urologit asap. thank you your advise

Glenn

johntPM profile image
johntPM

I experience an urgent need to urinate first thing in the in the morning, and to a lesser extent at other times, when my levodopa is kicking in. That's about 30 to 60 minutes after taking the first dose of the day.

in reply tojohntPM

I am the same

JohnPepper profile image
JohnPepper

Hi. I have had both frequent urination and and constipation for years. I recently started taking Aloe Ferox. It is an extract from the aloe plant. I took one tablet a day for four days, then had to reduce it to half a tablet and soon had to stop taking it, because my tummy worked every day. It is still working every day, and that is now for over two weeks. I will take a half a tablet if anything changes.

Because I have constipation licked, I can now not drink anything after 5 pm and I have less urination problems at night.

gkgos profile image
gkgos in reply toJohnPepper

thank you for your message I will ask my urologist if he has anything to say about aloe xerox.

Regards

Glenn

JohnPepper profile image
JohnPepper in reply togkgos

Aloe FEROX!

tedhoskins profile image
tedhoskins

My bladder/prostate consultant put me on to Tolteradine tartrate which I take around midday and I have no urgent need to urinate until mid-evening and then I might need to urinate 2-3 times and all is well.

Ted

gkgos profile image
gkgos in reply totedhoskins

thank you Ted I will see what my dr says aboutTolteradine.

regards

Glenn

Benidorm66 profile image
Benidorm66

Not great news I’m sorry to say but after trying numerous tablets I have resorted to a capheter. Not the most comfortable decision but I get a much better nights sleep and am not limited to only going out to where I know I can have access to a toilet!!!

gkgos profile image
gkgos in reply toBenidorm66

thank you something to consider I don't think i am there yet.

Regards

Glenn

FMundo profile image
FMundo

Michael J. Fox Webinars (Jan 2017) provides excellent overview of Urinary problems. Here is some info also from internet: (In PARKINSONS ONLINE):

Urinary Problems

Urinary incontinence (involuntary loss of urine) is a common symptom in Parkinson's disease (PD).

Why do problems occur in PD?

The bladder is a muscle which gradually expands as urine collects. At the opening, there is a muscle called the sphincter. This muscle is usually closed except when urinating. Both muscles are controlled by the brain. When 1-2 cups of urine have collected in the bladder, the bladder may begin to have small contractions that signal the brain that the bladder is filling up. The brain can suppress the contractions until it is convenient for the person to go to the bathroom. When ready, the brain allows the bladder to contract while the sphincter relaxes. This allows the urine to leave the bladder.

Difficulty holding urine is the most common problem.

In PD, the brain’s control of the sphincter is disturbed. The bladder becomes overactive and wants to empty even when there is just a small amount of urine present. This results in following symptoms

*

urgency

*

frequency

*

incontinence

*

repeated nighttime urination.

Drugs are available (e.g. Ditropan®, Detrol®, Vesicare®, Hytrin®, Probanthine®) to help. These medications relax the bladder muscle.

Difficulty eliminating urine is another common problem.

It can be caused by a sphincter that wants to close when the bladder is ready to empty or by a bladder muscle that is too weak to expel urine. This is a concern because incomplete bladder emptying can cause accumulation of urine and the growth of bacteria. The latter can result in an infection. The symptoms of difficulty eliminating urine include:

*

weak urinary stream

*

dribbling or leaking

*

feeling that the bladder has not completely emptied

These problems should be carefully evaluated by your urologist to determine their cause. If the symptoms are PD-related, the most successful management is intermittent catheterization.

Document:

The following signs of bladder problems should be reported to your health care provider:

1. Leakage of urine significant to cause embarrassment.

2. Inability to urinate when bladder is full - requires immediate attention.

3. Unusually frequent urination without a proven bladder infection.

4. Needing to rush to the bathroom or losing urine if you do not "arrive in time."

5. Pain related to urination.

6. Progressive weakness of the urinary stream which may be accompanied by a feeling that the bladder is not emptying completely.

Also, note how often you urinate in 24 hours, how often you are incontinent, how many times you urinate at night, and over what period of time these changes have occurred.

Management may include…

Medication for urinary urgency and frequency

Urological evaluation

Intermittent self-catheterization for urinary retention

Incontinence aids: Although urinary incontinence can often be treated, there are times when incontinence aids are needed. Knowing which aids work best for you and where to get them can restore your freedom and confidence. Incontinence aids are primarily chosen by the degree of absorbency required and the ease of use. During the night, high absorbency pads are usually required. Briefs with elastic around the legs and sticky tabs on the side are the most absorbent. Gel briefs are more absorbent than cellulose and can hold 2-3 voidings. For daytime use, "undergarments" which button at the hip or underwear shields may be sufficient and are easy to pull up and down.

The National Association for Continence or N.A.F.C. is an organization which provides a resource guide for a nominal fee as well as other self-help information: phone: 1-800-BLADDER (252-3337) or

Definitely worth a visit . . . Click Link Below:

nafc.org.

gkgos profile image
gkgos in reply toFMundo

Thank you for your message I am going to go toan urologist asap it is nice to be we'll informed before my appointment.

Regards

glenn

LAJ12345 profile image
LAJ12345

Are you on mannose and B1? I think both of them increase then need to urinate.

gkgos profile image
gkgos in reply toLAJ12345

I am injecting B1 2 times a week since July 1the unrgency started be fore this but it is getting worse.

regards

glenn

cflloyd profile image
cflloyd

My husband experienced this. He had BOTOX done in the bladder which the urologist said it would help to relax the bladder to stop the urgency. UNFORTUNATELY, IT RELAXED THE BLADDER TOO MUCH AND HE DEVELOPED A NEUROGENIC BLADDER AND THEN COULD NOT URINATE AT ALL. Please be aware of this side affect of the Botox. He ended up with a suprapubic catheter to drain the bladder.

You might try AZO with pumpkin for frequency. It's an over the counter supplement. Pumpkin seeds are supposed to help with prostate and with bladder health.

You all are in my prayers.

JeanieBeanie profile image
JeanieBeanie in reply tocflloyd

I need to give you a massive thank you. I took your advice and bought AZO with pumpkin seeds for my husband. He was getting up to urinate 3/4 times a night and his tremor was a major problem. After taking AZO for 1 week he is down to once a night and a very big added bonus is that his tremor is much better, even in daytime. No idea why but it has been consistently good now since he started taking it. THANK YOU SO MUCH!

gkgos profile image
gkgos

Thank you for your message sorry to hear your husband is having a tough go. I am going try AZO Thanks for the tip.

Regards

Glenn

sleezy profile image
sleezy

You are limiting liquids before bedtime, so you may need a medicine from a doctor's prescription for the urgent bladder problem. I have a similar problem at times. My problem presents itself whenever I eat or drink spices and acids. These items irritate my bladder. I quit trying to avoid them because the bland foods I was having to eat due to avoidance of acids and spices became so unappetizing to me I couldn't eat them. I haven't asked a doctor for a prescription for urgent bladder because I have had so many bad side effects from so many medicines. I am now only taking blood pressure medicine, a blood thinner, Sinemet, and an anti-nausea pill. One suggestion is to buy a small, portable urinal and keep it near where you sleep. If you have balance problems, there is a foldable potty chair that can be bought and kept out of sight during the day. I hope my comments are helpful and not discouraging.

gkgos profile image
gkgos

Thank you for your insight and suggestions.

Regards

Glenn

HeartSong profile image
HeartSong

Gygos, yes, I have found a definite help. It is the CoQ10 vitamin supplement. I take it separately from the rest of my supplements. It is a fat soluble supplement, so I take it with a meal that has a higher fat content. Occasionally, I just get out of the habit of taking it for a few days. That always, 100% of the time, results in me having the feeling of urinary urgency again and not being able to make it to the bathroom in time. Then, I start taking the CoQ10 everyday again, and 100% of the time the feelings of urgency and inability to retain urine go away. I've repeated this pattern enough times over the last 10 years to know that it's real.

I take 100 mg once a day.

The only unwanted side effect I've experienced from it is that if I take it close to bed time, it will take me a little longer to go to sleep. So, I take it during the day and then it doesn't affect my sleep.

There are a few precautions about possible interactions - especially if you happen to take a blood thinner. There is also evidence that CoQ10 might be beneficial to several health conditions. Here is what looks like a good and unbiased article about CoQ10 from the Mayo Clinic: mayoclinic.org/drugs-supple....

Copperbullet profile image
Copperbullet

My husband has been having night time frequency for about 2-3 yrs. Not able to take medication because of side effects. Recently had DBS battery replacement. Had to go off all vitamins and supplements prior to surgery. Frequency improved! From 6-8 times a night to 2-3 times. He was on B-12 (1000mcg),and magnesium - which I researched about urine frequency after the absence of both. Both supplements will cause increased urine. Doing good now. Might try to add B 12 back at a lower dose and take in the evening not in the AM. Neurologist put him on the B12 several years ago but his levels are good.

gkgos profile image
gkgos in reply toCopperbullet

Thank you for your reply. I take both B12 and magnesium. I am going to try stopping them for a week and see what happens . Also some others from this forum have advised Aloe Ferox and AZO pumpkin seed, you may want to investigate one or the other or both. Good luck.

Glenn

Copperbullet profile image
Copperbullet in reply togkgos

Never would have thought about vitamins until surgery prep. Has made a big difference.

Millbrook profile image
Millbrook in reply togkgos

Hi Glenn,

Have you had improvements on your frequent urination?

My husband used to wake up frequently last few years but it really got impossible with 6-8 times a night. After checking with the urologist he went on some meds that did not help him after awhile. We started using Vielight gamma and after a few months it was reduced to 2-3 a night. Then we started B1 therapy 3 months ago and recently added B12-1000mg n magnesium 66 mg as I thought it would improve his sleep. We also started ubiquinol300 mg . On good nights he wakes up twice which makes a great difference.

gkgos profile image
gkgos in reply toMillbrook

Yes I am much better I have had some success with acupuncture and being mindful of how much I drink and when I drink. Thank you for sharing your experiences. Regards Glenn

etterus profile image
etterus

I have had good results with Accupuncture. I try to get it every 10 days. Sometimes it produces exceptional results that shortens the treatment session?🙂

gkgos profile image
gkgos in reply toetterus

Thank you for your suggestion

I have been thinking about acupuncture how many times did you go before you got relief?

Regards

Glenn

etterus profile image
etterus in reply togkgos

I don’t recall since I have been doing it for years. I would give a try for a month or, two 6-8 sessions.

gkgos profile image
gkgos in reply toetterus

Thank you I am going to give acupuncture a try.

AmyLindy profile image
AmyLindy

Ditto

Millbrook profile image
Millbrook

Hi Glenn,

Just an update . My husband now takes 5 mg melatonin an hour before bed and he wakes up 2-3 times a night , on good nights 2 times. He only takes a low dose of vitamin B1 and Probiotic clostridium butyricum.

Chartist (Art) posted an informative but lengthy post on the benefits of melatonin

and also on nocturia

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