B1

[cshamb]

Still not feeling good on 2g B1. Dr. C had me reduce the 4 g to 2g. I e-mailed him and he recommended going off for 5 days and resuming with 1gr. Anyone else had this experience. I also asked about supplements to take but have not heard back yet. I am a very poor eater and have not taken any vits.

[Hidden]

About a week ago I was experiencing problems on 2.5 grams. I wrote to Dr C and he recommended a 3 day break then 1 gram per day. The break was awful. One a day isn’t quite enough but better than zero!!

[Hidden in reply to Hidden]

Retry but this time 4g a day. ☺

[Hidden in reply to Hidden]

Started on 4 it was way too much for me dropped to 3 then 2 on Dr C’s recommendation. Stability seems to be the key and keeping the blood levels up to the precise level for each individual

[KERRINGTON]

I'm having problems with severe fatigue and B1, Started with 2,3, then 4gms in March. Trying now to use with D and magnesium which helps sometimes. I eat well. I cut out all my other daily vitamins as they with b1 made me feel more tired. Going on a break for a few days, only relying on my mucuna puriens,

Wish me luck,,,having overbite guests for the 4th.,,,,,,,,,,,

[Hidden in reply to KERRINGTON]

Don't let your "overbite guests" take more than they can safely chew 😃

[KERRINGTON in reply to Hidden]

Ah, ha, ha,ha !

[MBAnderson in reply to Hidden]

Overbite guest?? That's a good one. What I'm going to start calling my in-laws.

[LAJ12345 in reply to KERRINGTON]

I found this interesting on fatigue. howirecovered.wpengine.com/...

[amatista in reply to KERRINGTON]

Hi.

what dose of mucuna it takes and what schedule, and if it takes it alone or with more medications at the time.

Thank you

Amethys

[KERRINGTON in reply to amatista]

I seem to be taking it haphazardly, according to the situation, At home I take 100 mg every 2 - 3 hrs. When meeting friends out, or in their homes, my need soars to approx. 200 mg every hour, or approx 100 every half hour. I take more, or less according to stress level. I'm 'only' on B 1, and tons of supplements.

[ion_ion]

I did some experimentation starting March and found the best dose for me at this time: 500mg before lunch (9am) and 1g after lunch (2am).

Higher dose is worsening the tremor, lower dose has lower results.

[Hidden]

Cshamb

The messages are to stick at it, monitor your response and talk to Dr C . He wants to help

[KERRINGTON]

Yes...I believe Dr C..

[ramondo4]

It seems that B1 is not working for everyone, me included, although I am reluctant to take more than 2g each day, I got no encouragement from my GP to take such a high dose. hand tremors feel worse, no energy improvement.

[LAJ12345 in reply to ramondo4]

Read this on fatigue howirecovered.wpengine.com/...

Very complicated but interesting.

[Benidorm66]

I appear to be the same as you. Because I take numerous tablets for other existing health problems, I started B1 dosage gradually and have now built up to 3gms a day.Not showing any results yet apart from stopping my constipation in fact feeling worse re my balance and tremor, I am going to continue. But don’t know wether to increase to 4grms or to try the weeks break. I feel so disappointed !!!

[Hidden in reply to Benidorm66]

Benidorm66,

It sounds like your worsening symptoms may be an indication of thiamine overdose! Have you contacted Dr. Costantini to let him know?

Art

[Benidorm66 in reply to Hidden]

No.Do you have his email address please?

[Hidden in reply to Benidorm66]

It is in the title of this post link:

healthunlocked.com/parkinso...

Art

[NancyJHP]

I've been taking 1 gram a day in the morning and I'm doing pretty good with it. My weight is around 170. Your weight should affect the amount you take I would think.

[Hidden in reply to NancyJHP]

NancyHP,

Would you please add your thiamine experience to the following thread about people who are taking thiamine for PD?

Thank you!

healthunlocked.com/parkinso...

Art