Too slow to sit down to pee.

[Lumpy12]

When I wake up in the nighttime and feel I have to go, I sometimes cannot get sitting down fast enough and I pee on the floor. Does anyone think I should get the help of a pelvic specialist or is thi just a symptom of Parkinson’s. The rest of the time I can go for hours. Sometimes 5 to 6 hours. When i do get to the bathroom I am usually fine, if I don’t freeze up. I think my problem is the freezing not my pelvic status. What do you think?

[Hidden]

Do you drink diet sodas or anything with aspartame in it?

[Lumpy12 in reply to Hidden]

Will try this

[Lumpy12 in reply to Hidden]

Only cofee in the morning, l will try using only sugar.

[M_rosew]

The urgency could be PD related, but don't get into the habit of dimissing problems as 'just the Parkinsons'. You can still benefit from specialist advice about incontinence.

[Lumpy12 in reply to M_rosew]

This is not covered by Ohio and is $250 for three appointments. Don’t want to waste my time or money. Do you think I should go ahead?

[Ajssister]

I’m with CKingPs. Stop the sodas. And the aspartame. Maybe try to get your fluids in before 6pm and go multi times before bed even if you think you don’t have to go. My guess is the feeling of “rushing” stresses you out n then you freeze up or lock up!?!

[Lumpy12 in reply to Ajssister]

Will certainly try it. My daughter did not let her little girl have milk after 6 pm. Anyone else heard of this?

[Hidden]

Aspartame and other artificial sweeteners or food preservatives like phenylalanine (used in a lot of chewing gums and frozen prepared meals) may interfere with the absorption of levodopa. (Google them together or check for drug interactions). Some people are more sensitive to them than others. People who have slower digestive systems (like many with PD) have them in their systems longer making them even more vulnerable to irritation,

Drinking lots of water early in the day not only helps flush toxins, but also provides an opportunity to practice Kegel exercises. (Try starting, stopping, starting,)

Responding to the first urge is important too. Once you know, you go. This is not an urge that will go away if you go back to sleep.

[Hikoi]

Lumpy

I presume you are on some medication during the day right? And no medication at night right?

If so incontinence happens when you are low on dopamine, your pelvic floor muscles arent working well at night but are ok during the day because you take your Sinemet through the day.

There are medications you can take for incontinence but I would avoid and try other measures like fluid restriction in the evening and pelvic floor exercises

And yes I think freezing adds to the problem

[ruff1]

I don’t have Parkinson’s ( my husband does) but I do have pelvic floor problems, I’ve just been to see a specialist Women’s physio if you want to send me your email address I’ll message you 😀

[Rosabellazita in reply to ruff1]

Will u message me at [e-mail] I have incont. And a bladder prolaspe. I have hand tremor and take amantadine which does not help either problem.

[Lumpy12 in reply to ruff1]

[e-mail]

[SilentEchoes]

I recommend organic stevia for sweetener. I got mine from Amazon, it's pure stevia without any fillers, a little goes a long way.

With urgency, it's probably best to rule out other causes. But sometimes you just can't move fast enough.

[Smokeypurple]

Since I started Mannitol I have been going to the bathroom less at night. Sometimes I even sleep through.

Just in case that would help. (Bowels working as well if not better than before too)

[Kaykaykay123]

I have the same problem but during the day sometimes too.I find coffee makes it much worse

[paulalex1313]

Urinary urgency is a symptom of Parkinson’s, but could be due to other reasons. It would be worth seeing a urologist, or a specialist urology nurse at a urology clinic for advice.

[Bolero]

I tend to agree with those here who have advised you to investigate further for a medical cause to the problem you are experiencing. Meanwhile get yourself some adult diapers so that you won't have the problem of "not making it in time'', which is pretty distressing. Good luck - Robson

[Lindylanka]

This is called urge uncontinence and is a result of the brain signalling a letdown urge prematurely to the bladder. It cannot be controlled by pelvic floor exercises or by changing what you drink, though drinking less during the evening and late at night helps. The reason that pelvic floor exercises don't help is because while they help train the neck of the bladder (urethra) that isn't the problem. To evacuate the bladder, the bladder, which is a muscle, contracts. This is what is happening too early. So making your bladder tighter makes the problem worse. Try instead setting an alarm for earlier than you would normally wake and see whether that will help. There are also mental distraction techniques! Here are a couple, try counting down backwards from two hundred, or focusing verry deliberately on putting your heels down first as you walk to the loo. Anything but thinking about why you are foing there. There are other bladder training techniques, but most didn't work for me, and the distraction things do. Well, most of the time....

[Hidden in reply to Lindylanka]

Distraction is one of my best friends. I really appreciate suggestions like putting heels down first... This may not be related (one thing i seem to be doing a lot of is looking for connections to everything) but, one of the listed effects of carbidopa levodopa is what feels like swelling of the parts around the urethra (can’t think of correct terminology? Ureter?) making it difficult to feel what is going on.

Never considered that making things tighter would cause problems. I am so focused on not humiliating myself or making a mess I can not clean up myself. Combine too much exercise with atrophy seems to result in not being able to “letdown”. Then, sitting in the bathroom too long puts pressure on the backs of the legs. The pressure on the backs of legs is not good for circulation and can make feet feel numb and is really not helpful to people with blood pressure issues. They have probably done studies on why so many people get dizzy and fall in the bathroom. A prescription for being mindful of little habits that feed problems may not help, but at least the only side effect i know of is feeling like i have a little control.

[Joanne_Joyce in reply to Lindylanka]

Thanks for all your good advice. I"ve been trying the exercises and put my hopes on them but no luck so far. The Distraction techniques sound good. During the day, I can control it until I start heading to the bathroom - or even when just reach our house if I've been out. It used to help to pretend I was going somewhere else - Iike focusing on opening a fridge instead of heading to a bathroom and that would deceive my bladder But that doesn't work now. How I wish someone has found something that works.

[Lumpy12 in reply to Joanne_Joyce]

Sounds like a good idea I will.

[redread]

Trying the suggestions offered are all helpful, but until something works, you might want to keep a urinal near the nightstand so you don't have to take the time to walk to the bathroom. Just stand by the side of the bed. My late husband did this due to balance issues, and the danger of falling while possibly disoriented in the night hours. For some reason, he tended to urinate much more in the night than during the day.

[DianeJ]

I read in a medical column that sleeping on your back causes the kidneys to produce more urine. I notice that this is often the case.

[pad10]

I have a friend with PD who had incontinence. He went to a urologist and they gave him a Botox injection and that did the trick. He has no more problems with incontinence. I cant remember how often he has to get a shot but you could probably google it.

[Lumpy12]

Sounds easier than the other ideas.