Pain down outside of leg -- hip to ankle - Cure Parkinson's

Cure Parkinson's

26,572 members27,877 posts

Pain down outside of leg -- hip to ankle

rebtar profile image
20 Replies

Over the past couple months, I've developed pain down the outside of my left leg (more affected side), sometimes starting in the buttocks, sometimes in the hip, down to the outside of the ankle just above the ankle bone. Definitely PD related, as it is much reduced after each dose of C/L.

It's worst in the morning when I wake up, fine until I put weight on the leg, and makes it so that it's hard to walk until the c/l kicks in.

Anyone had this issue, and are there exercises that can help loosen this up?

Written by
rebtar profile image
rebtar
To view profiles and participate in discussions please or .
20 Replies
lenamm profile image
lenamm

Sounds like possible sciatica - probably better when your muscles are less rigid (on meds). I had it for four year between age 19-23 (way before PD at 41). Did chiro which helped but acupuncture was a game changer and got rid of it permanently for me. For four years I was on pain meds daily (NSAIDs) - three acupuncture treatments and no more NSAIDs needed.

rebtar profile image
rebtar in reply tolenamm

It occurred to me that it might be sciatica, but the fact that it gets better or goes away entirely with c/l made me think rigidity or related to the dystonia I get in my foot when meds wear off. I'll get it checked out by a Chiro or acupuncturist, I guess. Thanks.

Smittybear7 profile image
Smittybear7 in reply tolenamm

I am having similar problems with my right leg,always when I sit. My leg sometimes goes numb and I have trouble getting up from my chair or getting out of my car. Once standing or laying down seems to relieve it. It's extremely painful and embarrassing to have someone help me get up. My chiropractor and muscle therapist help somewhat. I have extremely tight muscles on the right side of my body and not much strength in my right upper body.

Rosenmu profile image
Rosenmu

There are Trigger Points that occur frequently in the spot where the thigh bone and hip bone connect, that general are on the outside of the hip. They can cause pain and tight muscles from hip down to the foot, deep massage into the hip joint and chiropractic treatment are a help.

Smittybear7 profile image
Smittybear7 in reply toRosenmu

Thanks

lenieb profile image
lenieb

Thanks for sharing this. It's not exactly my issue, but has similarities. Do you have a good Physical Therapist to help you with proper exercises?

rebtar profile image
rebtar in reply tolenieb

No, I haven't needed one in the past. I'm going to try chiro first -- see if that helps.

chartist profile image
chartist in reply torebtar

You might try icing the lower third of your spine to try and eliminate it as the point of origin and once you have eliminated that, try icing as much of the hip area as possible. If the icing gives any relief at all, you are probably very close to the point of origin of the pain and can direct your efforts appropriately.

Art

rebtar profile image
rebtar in reply tochartist

Thanks

Dragona profile image
Dragona

Hi I don’t have pd but I have just had 4 weeks of exactly the same, sleeping was horrendous, I had acupuncture and was told it was sciatica, for the first time in four weeks it has gone but I sympathise because it is not nice

rebtar profile image
rebtar in reply toDragona

Thanks

Kia17 profile image
Kia17

Hi Rebtar,Many of PwPd lower extremities problems originated from the Psoas Muscle. Doing Psoas strech exercises with help of a physical therapist could help alleviate lower extremities pain and better range of motion .Kia

rebtar profile image
rebtar in reply toKia17

Thanks

aspergerian13 profile image
aspergerian13 in reply toKia17

Yes, a very important muscle.

Psoas Syndrome: Symptoms, Causes & Treatment.

my.clevelandclinic.org/heal...

Sapeye2020 profile image
Sapeye2020

I have a similar problem , and mine comes from my Left ' IT Band' that has a copious amount of remaining scar tissue from a shattered Femur many years back. Now, adding PD (2013) and no amount of stretching and massage has had zero lasting effect. Acupuncture has helped over time. A good diagnosis from a Physio or Registered Massage Therapist, Chiropractor etc is needed.

Good Luck

rebtar profile image
rebtar in reply toSapeye2020

I saw a chiro yesterday, he thinks its the piriformas muscle that's irritating the sciatic nerve. Adjusted and gave me exercises. I expect If I'm persistant I will find a solution.

Sapeye2020 profile image
Sapeye2020

I very recently watched a 'You Tube' done by a fellow that addresses SCIATICA , he has a Doctorate degree in Physio Therapy youtube.com/watch?v=5ZXJEO6...,

hope you find this helpful.

rebtar profile image
rebtar in reply toSapeye2020

thanks!

laglag profile image
laglag in reply torebtar

Did the chiropractor visit(s) help at all? Chiropractors can be very different in their methods. See if you can find one that is familiar with Parkinson's. Hope you are feeling better.

rebtar profile image
rebtar in reply tolaglag

Didn’t help much. He gave me exercises. I’ll give it one more visit.

Not what you're looking for?

You may also like...

Back to my leg pain issue

This symptom just seems to get worse and worse. I wake in the morning and even with increasing my...
rebtar profile image

Just needing some words of support... and news on the leg pain.

I've never posted something like this before, but this is my community and I'm just feeling the...
rebtar profile image

Leg pain

Sometimes I have terrible leg pain in my left leg. It is so bad I cannot bear weight on it. I...
tobykeith profile image

What gets me through the day and night.

The first thing i do when i get up is i go outside and take a deep breath and look up at the...

Is a heavy feeling in one of your legs a symptom of Parkinson's or PSP ??

Hi, I am currently trying to wean myself off of C/L ( doctor approved), and I am experiencing a lot...
moparkie715 profile image