After a lot of research and thought I have come to the conclusion that Parkinson's far from being a disease in fact our body is doing exactly what nature intended to protect itself!
It is the bodies way of giving a red light to danger! With given medication we are overriding the warning which is like putting your foot on the accelerator of a car with no oil!
Human's unlike animals in the wild have learnt to suppress stress and trauma backed up by memories, a good reason for this is the example of what happened to soldiers in the trenches.
While under fire the bodies natural response would be to run or fight, if unable to do this the bodies next line of defence would be to go into the fetal position and shake! Is you displayed these symptoms during the 1st WW you would be likely shot as a coward a good reason to learn to suppress the emotion! Still to today our first responders have to suppress these feelings to be able to do the work they do.
Animals in the wild do not store the memory of trauma but just shake it off and then recover quickly, the exception is caged animals and Human's the difference in the caged animal is it has repetitive stress which works in the same way as memory.
My belief is that in Parkinson's our bodies are doing exactly what they are supposed to but instead of hitting the reset button (shake) we pour more fuel onto the fire.
The key to the reset is the psoas muscle which nature gave us for a reason, it's function is many but it is the muscle that puts us into the fetal position when we come into the freeze part of flight from danger. Think about the posture of Parkinson's in it's tightened position (flight) it constricts the bowl (constipation ) it is connected to the Vagas nerve the largest nerve in body that run to the brain and not from it. Stomach ache back pain leg pain fequency of urinating are all warning of danger. It's in our language already (gut feel) (I feel it in my waters ) and the best of all (shake it off & shake yourself out of it!) Maybe it was always right.
Once we know the cause of something we can treat it, methods of releasing the psoas is TRE trauma release exercise which can be found on YouTube alongside fasting,nutrition, exercising and socialising.
I hope that this is helpful to others
Chris
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Mulberry4355
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Something I didn't mention was my observations of soldiers coming out of conflict, when in a place of safety the army gives unlimited amounts of alcohol to suppress trauma! In fact it just hides it from veiw!
We all knows what happens when someone withdraws from Drugs or alcohol SHAKE!!!!!!!
I know that with my parkinsons if I apply thought to my tremor I can stop it temporarily! Which tells me that the tremor is totally unconscious what nature intended SHAKE!!!!!!
Are we just suppressing the thing that is trying to heal us?
I know my Parkinson's came from extreme stress over about 3 yrs of constant fear of a drunken violent neighbour. Any time I was home alone I carried my mobile in my hand constantly. The first time my tremor showed it's ugly face was on the 3rd visit from the police when we were in fear of our lives.
I was diagnosed with Parkinson's, put on medication and didn't go well. Medication was increased and I felt worse.
I got off meds after 18 months and went on a small amount. 3 x 50 mg of Madopar per day. This week I dropped back further and today I had 1 x 50mg Madopar capsule. I will have 1 for the next few days and stop. I feel better without medication. I assume I am a rare case, but I feel better now than I did 1, 2 and 3 yrs ago. I believe there is something to this philosophy.
Yes as you would expect, bad when I'm stressed and none when calm!
The interesting thing is I am able to stop the tremor for a short while by conscious thought which confirms that the tremor is unconscious and totally normal behaviour
I was on Azilect once per day and 4 X 250mg Stalevo. Stopped the Azilect and after a week cut out one Stalevo. After 2-3 weeks I cut back another Stalevo until I was off them. I have a slight tremor in my right arm and my hand is slow to react. My right leg is 'heavy' sometimes. I was developing dyskinesia and that has gone.
If you take your time you can get off them. I was at my worst when I was due to take the next tablet, that was what made me think I was dependent on them. After an hour without I was ok. I just find I am better without or little medication. The side effects aren't worth it. I had hair loss and developing dyskinesia. It wouldn't suit everyone but if you cut back slowly, listening to your body, you may be ok without or less. I'm not perfect. I have a slight tremor and the slow movement drives me crazy, but it's better than dyskinesia. I have to accept I do have Parkinson's.
Today I started Mannitol and ordered more natural things that one of the people on this site is having an ok response from. I will see how I go. Follow your instincts. Find a Dr who supports you. Cut back slowly. My Dr said drop back after 2 weeks, I needed 3-4 sometimes. Good luck. Let me know how you're going.
Interestingly i usethe story of being chased by a bear to explain the role of the psoas it contracts the bowel so you don't have to stop for a poo whilst running away
I just came inside after doing some TREE trauma trimming therapy and found this post. Sore ass muscle cause of Parkinson's may have some validity.
loves the spellcheck "sore ass" for psoas We have a TRE guy locally, so this encourages me to talk to him. BTW Beloved rarely tremors and definite stress trigger is evident. I found a book in which was the instruction; observe your breath for five minutes. Simple. Couldn't be simpler or more effective in letting stressful (memories also) go. Look for tears falling as a positive result - and this doesn't mean actual crying. Brilliant for both of us to do together.
I totally agree with the tears being a positive result! Another automatic body response, you only have to talk to anyone that works on the psoas the strong release of emotions in can bring.
I have also observed my grandchildren when distressed given the two deep sobs as an automatic body response when they feel safe again "green light to body to go off high alert"
I am now 2 months off all medication with the bonus of no constipation ☺using my tremor to alert me when I am in a stressful situation to get back to a safe place!
It sounds like you're saying that stress is what causes Parkinson's. That may be true. At least for some people. Or it may certainly exacerbate it. We don't know, do we? That's one of the things it's up in the air, causation. But one thing I do know, it is a full body experience. Way beyond shaking or bending forward, as in a fetal position. I find it a head to foot experience. Everything from headaches and cognitive issues to foot pain. And in between too many things to itemize this early in the morning. 30% of people don't have a tremor. I am in that percentage.
It's not so much about the stress but more so to do with how society deals with it! Stress is a very useful tool to warning us of danger only it's suppression and memory of it is dangerous. The body comes stressed over many ways not only trauma but also chemicals in the environment.
I only used the fetal position and tremor as an example in fact the multiple symptoms of parkinson's and many other neurological conditions are the same as the freezing stages of fight or flight.
My reasoning behind only 30% having a tremor is the other 70% have a stronger suppression mechanism in place. The cognitive problems are the brain's safety switch to prevent further harm.
From reading about the variety of PD symptoms, it seems to me that Parkinson's could be an umbrella diagnosis for a few different diseases that have not been identified yet. I think that one of subgroups of Parkinson's could be Lyme which is very difficult to diagnose and which can mimic many neurological symptoms.
I agree with Lyme...., after two years I was also diagnosed with Lyme....., frustrating is that the doctor said : > 1 year you have to rotate with antibiotics , is necessary to prevent FURTHER (!) damage......
Yes, it is possible to find if there's a link using energy modalities that employ simple kinesiology, or muscle testing, or dowsing to delve into possible connections. Nothing scientific - so not for the left brained amongst us (who need logical explanation to underpin action). I look on the right-brain experience as empowering, fascinating, and often useful to MyBelovedhasPD.
I have observed wildlife for years but this is a combination of many things resently that have come together! I was trying to understand the role of constipation in parkinsons. Which opened the flood gates.
Why some get parkinsons and others don't is purely down to how you repress stress if are able to display anger it's better then burying it!
It's only conection to genetics is learnt behaviour how you are taught to deal with stress
Research on the Internet >>> reading articles of Dr. Dietrich Klinghardt (a bit Special) and then to a 2 day seminar with Dr. Joachim Mutter in southern Germany (more realistic).
There was also a Lyme-Spezialist speaking,....Dr. Armin Schwarzbach,.....and after a huge Labo-Investigations he discovered undoubtedly that there was an issue with Borrelien Burgdorfi and also EBV.
Attacking (and that's a bit the point, FOR. hOw LONg already...?!??...) my Immunsystem resulting in a lot of low levels of bloodcells, amongstthere are CD-57 cells......
I have most muscle rigidity right site and therefore I'm taking now a "full basen bad" , try to get a Ph level of 8,5 or more and Temperuter 36 + Degrees. Trying to do that a half hour.....not easy, because you get disy.......so at best before going to bed.
And afterwords then minutes of meditation and trying not to think on the other day (how long will I be able to work.....😯😯)
Nowadays the stress is the main thing for me......living alone, still have to work, etc......
Sorry That email was sent to you by mistake. It was meant for Mulberry 4355 who claims PD is not a disease. You have
a most difficult time : living alone, having to support yourself no wonder you’re stressed out. Stress makes our symptoms worse. I am sending positive thoughts and energy to you.
I think the old saying not to get caught with your trousers down relates to the role of the psoas muscle during fight and flight.
If being chased by a bear the body's first response is to lighten the load to aid running then the psoas tightens to aid escape not stopping for anything "no time to get caught with trousers down"?
So many misconceptions....animals in the wild- elephants for one example remember human slaughter of their family members and surviving groups have become aggressive when confronted with researchers. Please educate yourself on a number of issues you have espoused.
Parkinson's is definitely a disease; but that is not to say that its effects in around and upon the Psoas does not play a greater or lesser role in the overall picture.
Yes in the context that it is a cronic condition it is a disease! But as a cause I don't think it is a disease it's just our body doing what it was designed to do to protect it from further harm
Why has parkinson's research made so little progress in over 50 years!
If they changed from treating symptoms to causes they might have more success. If you call a plumber to fix a leak you want him to stop it not plug it?
I disagree. In my experience in this living hell of PD; The act of the body protecting its self, is the general overall shut down within the Peripheral nervous system (That's why the Neurologist test feet sensitivity and reflexes as part in diagnosis).
The transmission processes are most probably fourfold within every single cell within the nervous system providing both action and feedback at the same time (signals travelling to and from the brain, both ways through and within every fiber) .
Shakes, tremors, freezing etc., simply identify that a part of the cells are not functioning in tune with adjacent cells, and their role and or function has been disrupted by XYZ!
Which is why my research and Bocowo A&B trials have been centered upon finding the answer for X ( in the hope that answers to solving the YZ will shortly follow )
Why would nature create something that doesn't work? We would soon become extinct!
The end stage of the flight mode the body switches to freezing mode "playing possum "
The feet test is only displaying this condition that the body shuts down to protect a stag chased will collapse eventually from cronic fatigue. A baby deer left alone by it's mother will freeze and shake the shaking is its way of expelling it's stress
"Why would nature create something that doesn't work? We would soon become extinct! " That is life ; survival of the fittest - Evolution does not cease! Life goes on with or without human kind.
" The end stage of the flight mode the body switches to freezing mode "playing possum " The feet test is only displaying this condition that the body shuts down to protect a stag chased will collapse eventually from cronic fatigue. A baby deer left alone by it's mother will freeze and shake the shaking is its way of expelling it's stress "
So when a natural food provides the cure for Parkinson's you will not partake?
It's not a cure as the damage has already been done, it's a life change that can stabilise with some improvements possible.
Nature provides us with everything we need if we use gut instinct to find it! There are a number of plants that support a healthy life and widely available to wildlife
For starters, Parkinson's renders its victims seriously unfit for survival, so if evolution were to apply those genetically most susceptible would be weeded out. However, Parkinson's occurs after reproductive years in the vast majority of patients. Therefore it is not a trait they would be selected against by evolution.
In general you have not the slightest idea what you are talking about.
As you describe seriously unfit also applies to an exhusted animal being hunted show all the same symptoms! It's always the oldest and strongest male in a herd that pass on the line!
More so than I don't have a clue I suggest you aren't able to understand what I am saying the response to article bears this out!
I did not get Parkinson's as result of being exhausted and being hunted and the same is true for the vast majority of others here. Moreover, the response to being exhausted and hunted will lift when those conditions no longer apply. So the two have nothing to do with each other.
Not the oldest the strongest. The winner kills the lion cubs of his rival so that his genes are passed on. So goes the cycle.
You do not answer a direct questions. Do you have a scientific background into the study of animal wildlifebehavior? If so what is it? ? Please be specific.
It might be the strongest in predictors but it is the wisest in other species as demonstrated in Tai Chi developed by observations of nature.
Please explain what you think that I have not answered? Science and intellect are another form of social bullying and doesn't allow thinking outside of the box, if we followed nature and not science the world wouldn't be in the mess that it is in! Science would examine a barnacle but not obverse the blue whale that it's attached to! Science missis the bigger picture.
Not that it matters in the slightest my background comes from observations of nature. but primarily observing wild solitary bottle nosed dolphins and the therapeutic affect they have on humans suffering from manic depression and children with cerabal palsy as well as autistic children. My other field is observations of manatees in the wild for over 30 years, both use vibrational energy to heal!
My other area of study is the works of Nicola Tesla, who's conclusion was everything comes from vibration and frequency!
I am aware how this is very confrontational to some people's belief system all it takes is an open mind! Some people don't like simple answer it attacks there intelect!
I just want to put it to the test so it stands on it own
There is every reason to call out nonsense as nonsense. Out in the public arena mass shooting victims are being defamed as phony "crisis actors". Would you say we need to be open-minded about that claim?
I am all for finding the upside in our situation. Moreover there is upside to be found. Nothing wrong with that. If you do not want to label it as a disease that is fine too - I just call it Parkinson's. However there is no need to depart from reality to do these things.
>"But to criticise without an alternative is wrong"
If your theory made any sense you would have a point. But in actual fact your theory is nonsense. I pointed that out and why. Instead of responding to my criticism you tried to distract from the issue by inquiring as to my profession.
So much more the pity if you spent years doing this. Years, by the way, does not take an apostrophe when used in this way.
I think you your view on this is in the minority! The reason I enquired about your profession was to see if I could identify a source of your PD! You are the one without any jurisdiction called my idea nuts! To add to my thought's people that display bullying tactics have a large amount of suppressed anger If challenging my spelling is the best you can come up with try again!
Four Neurologists I have seen (over the years) have regularly scratched the sole of each foot and watched the reflexes at play. I guess it provides a good indication of current condition of the Peripheral Nervous system.
That's totally understandable, my own parkinsons was caused by prolonged exposed to dry rot and woodworm treatment, the body reacts to all dangers wherever it comes from?
I think that in my case. I'm the only member of my family with PD. Not genetics. I did inhale massive amounts of smoke from a jet fuel fire on an aircraft carrier, probably mixed with metals, plastic, and asbestos.
It's the muscle we have had since we developed from reptiles and conected by the vagas nerve to the part of the brain from the same time it only has two main functions fight or flight. The only muscle that connects upper and lower body
Not come across this but this muscle is responsible for a lot of differed back and stomach pain it has more nerve endings than any other part of the body and travel straight to the brain because when the body is in fight mode the signal has to be fast or we don't survive to evolve?
Do you find that those who have been able to put up filters to handle the stress of the day feel like Zombies to you? Those who have PD PTSD and DS seem to me to be alive. I will also throw MS there.
I totally agree, but it's not a question of filtering the stress it's about releasing it as animals do in the wild as and when it happens! your point about Zombies relates to people with cronic conditions are more likely to be in the now! I worked in a hospice for many years and with homeless refugees that had lost everything they were all very in your word's alive what I call the now
200 years ago the only stress was will I have enough to eat today? If you were a farmer this stress made you work hard and pray for rain. You could not do anything about the rain so you put it into God's hands. If there is a Peter Principle for work I would assume the same for life.
Interesting post, from my standpoint the assumptions seem very plausible...having suppressed chronic stress for at least thirty years....fighting or flighting was rarely an option but would have been the best move. Instead the stress/unregulated adrenaline, I believe caused my PD eventually.
I watched several videos about tre today, as i am open minded and will try nearly anything to improve. So i tried the exvercises and actually felt mildly better on the first try. What do you have to lose? Just try it!
I think TRE is one of many ways forward and is key to helping to understand exactly what PD is! I also find Nordic walking helpful as it also works on the psoas in a similar way
Wonderful connections you make here, Mulberry. We speak the same language Psoas muscle is the seat of powerful emotions held 'inside' for fear of expressing at a time of trauma or continuous stress. It is I am now sure (faster than talk therapy) to release this - years of study and practice in many modalities has taught me how. I recognise in Beloved when emotions are wanting to release tension and we constantly gently allow this, with the result that medications are less rather than more. He's much better than a year ago as regards PD. Weightless despite a great diet and his appetite, is what I'm focussing on now. Brilliant thread everyone - glad I joined you here.
I believe you're on to something here but you seem anxious in explaining all the details. There are many many reasons (including stress) why the body and central nervous system react with the result of PD. I was a heroin addict for many years (about 20) and a vegetarian for most of those years, have never suffered from constipation. Did heavy construction work for 20 years so yes I think the psoas applies but it's not solely the reason for PD (Parkinson's disease). It is complicated very much more complicated than your seemingly anxious 😩 explanation of each and everyone of our individual very different complicated lives being just a Psoas. No offense my brother in PD.
Adrenalin imbalance interacting with or alongside Dopamine imbalance? It is all so complicated and we are all so very different in regards to everything, including triggers for anxiety or fear of unknowns.
Dopamine is synthesized in various regions around our bodies unable to cross the blood brain barrier (keeping it isolated from the Central Nervous system) and there is no doubt a 'trigger or keys', that act upon it; braking & regulating, to inhibit and dispose of any overloads in production.
It would only take a little wee virus, to hook up upon that 'triggering key', before carrying it across the blood brain barrier, into the Central Nervous system, especially when the good Prebiotics are not wholly up to scratch. And the destruction of the Dopamine system in the brain begins.
But that takes us back to the idea that Parkinson's is a disease. OOPs!
What does the Meningitis carrying bacteria and or virus gain when it enters someone's brain? We can only guess; but the facts point to disease.
Parkinson's disease could just be the result of 'the carried biochemistry remaining' after the brain has destroyed the virus/bacteria that delivered it. Who knows? But that is why so much research is being done towards trying to find out the best ways to deal with it in various forms or ways.
Because we are stopping it from doing so! We suppress the final stage of the process the tremor which alerts the body that it's safe to produce dopamine.
Also by taking the drugs tricks the brain, so the tremor is the solution not problem.
A herd of animals can communicate over a large area using tremor that it's either safe or not
Although I can appreciate the attempt to think out of the box this theory is lacking in many fundamentals in known anatomy physiology and pathology. A prime example of the misunderstanding is the reference to the vagus nerve to psoas musculature.
The vagus nerve is a cranial nerve that is predominantly part of the autonomic nervous system which is not volutionary,I,e, we don’t exhibit control over it’s function.
However the psoas is innervated by the femoral nerve ( L1-4 ) a peripheral nerve which is predominately voluntary, a part of the somatic nervous system. The only voluntary functions that are under vagus control are respiratory and pharynx.
The animals in the wild displaying Parkinson's will be hard to find; as they will naturally go into hiding and starve or get caught by a predator pretty swiftly
Yes that is what would happen in the wild! But we develop PD because of the prolonged stress rather than being eaten and supported by pharmaceutical drugs
This is so reminiscent of the talks about causes of cancer 30 years ago. When there seems to be a void someone presents their theory with personal anecdotes as support.
The clever ones are those that market these ideas as facts and then prescribe the cure and hey preston, not only do they make money they have a loyal band of followers who will defend them through thick and thin.
Mulberry you have every right to put forward your ideas, and I think others have every right to say what they think of them and why. It is unfortunate when disagreeing gets called agressive or when its suggested that those who disagree do so because they are confronted by a truth they do not want to accept.
When the atmosphere is getting so agressive I tend to withdraw from this group. It feels like some opinions are not supposed to be uttered. I am thinking about withdrawing again because of the bullying going on. It is a pity because there is also good information
I'm wondering how many people have cervical neck issues? I watched an interesting video implicating reverse curvature and misalignment of the neck in strangling blood flow to the brain stem and causing PD symptoms.
The classic PD posture is the effect of the psoas muscle trying to adopt the fetal position! How many PD sufferer's sleep in this position and awake with pain?
Parkinson's symptoms are as different as day and night for most all sufferers so lumping them together feels so wrong. My wife lost total use of her legs very quickly. She went from being semi self sufficient lady to a bedridden nursing home dweller in 2-3 weeks. After massive scanning & tests to rule out MS and other maladies, Parkinson's came up as the most likely diagnoses at this time [they are still looking for other reasons]. A big factor here is that after only TWO doses of Sinemet, my wife recovered the use of her legs. Now she is home and uses a walker to go all over the house and 12-15 bathroom trips per day all by herself. If we miss one dose of her Sinemet, her legs start locking back up again. I know missing two doses would put back to zero again. So her Neuro doctors are still working on this. I hope you were not suggesting that she refuse her meds and live in the nursing home for the rest of her life while a cure MIGHT come along? I'll not let that happen. She needs to be medication treated right now, so she can walk, be active, and be with her many loved ones until another hopeful treatment may arise. Leaving her untreated now is throwing her life away. Period.
Of course parkinson is an umbrella concept. So I can only tell what is my experience with the symptoms I have.I had quite a lot of operations on my legs especially in the last twelve years and after my first total knee replacement four years ago after the operation my right arm began to tremble. I am not much of a pill taker and I really want to understand what is going on. In the past I did a lot of bioenergetics and I know how it feels to have the energy flowing free in your body.
A friend of mine has got a yogastudio here in Amsterdam that also gives TREclasses. To my surprise my legs did not tremble like they did with other people and the energy downwards is stuck completely. Everything was as stiff as stone. Something is scared to death inside me. Only my right arm trembling like mad and inner storms going on inside ny body.
The theory that Parkinson is a kind of freeze reaction in a fight flight situation makes sense to me. That does not make it simple to solve the situation. Now after a few years of exercise my legs and my psoas have enough courage to shake a little. They peep aroubd the corner. But my legs still feel very stiff. Sometimes the tremor in my right hand >translates> into a trembling of my psoas and muscles in my inner thigh. That makes me conclude there is a connection.
Also the fact that boxing helps with parkinson ( getting away from freeze into fight) and fast walking (John Pepper and others) (getting away from freeze into flight) or doing chi kong or meditiation or yoga ( calming down feeling there is no danger in the first place) supports this theory.
The thing is we are such big mindfuckers (I am) that we overrule our primitive brain so much that it cannot do what is necessary to relax.
Of course there is also more : For years I had too little vitamine D which is not good for your brain and beside the stress about all these operations I also ate too much sugar and other carbs. Burning fat instead of glucose is better for your brain at least every so often. See the role that betahydroxibutyrate plays in your brain. And I push myself too much into exhaustion. It is all summed up.
So I take pills but try to do as much as possible for lifestyle. This includes becoming aware of what is going on in my body . Also by way of doing TRE. The translation from the handtremor into the innerthightremor and psoastremor is really exciting I can tell you. The energy starts flowing again
Forgive me when my english is not perfect. It is not my first language
Thank you, I just wish others would do there own research rather than being critical of things they do not understand. I found John's walking was the first part of my recovery but now using Nordic poles which I prefer. I'm surprised that TRE is not more know about especially with the almost instant benefits!
It makes me more motivated to concentrate on TRE and more methods to develope body conciousness. Perhaps better not fight anymore against people who donot understand. They pick it up or they donot. Let us keep in contact and share experiences
For me it is quite clear: too much stress means too much time with high cortisol and low dopamine levels. When you donot use it you loose it. So you develop Parkinson.
It's simple the tremor is the solution not the problem we choose to break the circle by social conditioning. The good news the circle is very easy to repair the bad is it's more difficult to repair the damage but improvement is possible with the right surport
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We have a TRE guy locally, so this encourages me to talk to him. BTW Beloved rarely tremors and definite stress trigger is evident. I found a book in which was the instruction; observe your breath for five minutes. Simple. Couldn't be simpler or more effective in letting stressful (memories also) go. Look for tears falling as a positive result - and this doesn't mean actual crying. Brilliant for both of us to do together. 
What causes Parkinson's Disease in most people? Is it mostly toxins?
Pain is a word from the past!
Is Parkinson’s Disease a Prion Disease? Alpha synuclein and prion-like behavior. 
