Trying to find out if I have a future wit... - Cure Parkinson's

Cure Parkinson's

26,583 members27,897 posts

Trying to find out if I have a future with my spouse with me have stage 2 Parkinson's

4MCBFAMILY profile image
14 Replies

healthunlocked.com/user/4MC...

Written by
4MCBFAMILY profile image
4MCBFAMILY
To view profiles and participate in discussions please or .
14 Replies
Bailey_Texas profile image
Bailey_Texas

Of course you have a future with your spouse.

Are your symptoms controlled by meds.

I am 62 10 years dx maybe 15 years with symptoms with meds and exercise i am completely

independent. And show no signs of slowing down.

If stages are based on medicated symptoms i am just started stage 1.

I think i am in stage 2 pushing stage 3 if they are talking about un medicated symptoms.

4MCBFAMILY profile image
4MCBFAMILY in reply toBailey_Texas

Thank you for your reply. It gives me some hope. If u don't mind me asking are you married still?

Bailey_Texas profile image
Bailey_Texas in reply to4MCBFAMILY

45 years and counting same lady.

4MCBFAMILY profile image
4MCBFAMILY in reply toBailey_Texas

Wow! That's great and I'm hoping I can get there, however it's scary to me because of how quick my PD is progressing especially when my Doctor is concerned but intrigued. I did get lucky and ended up with a Neuro doc that has been specializing in PD from the very start and is the head of the board of neurology in Louisiana. He took me on as patient because of my age and have had no family history of PD. I'm truly blessed considering my circumstances.

wifeofparky profile image
wifeofparky

My husband was diagnosed at age 61. There was no way I was going to end my marriage over PD. We worked as a team and attacked it together. God bless and try to think positive! BTW - we were married for 42 years before he passed away from non-PD cause.

laglag profile image
laglag

YES! I was diagnosed 13 years ago & I was divorced & worried that no one would want me. I found someone a couple of years later & we've been happily married for 2 1/2 years.

rhyspeace12 profile image
rhyspeace12

My husband has Parkinson's. Only for the last 7 or years that we knew, but he's been a restless leg man since we got married, and now we have been married for 56 yrs. Hang in there and enjoy!

stevie3 profile image
stevie3

Yes! I have PD and my husband takes his cue from me - practical and matter of fact. When I was first diagnosed, it was all I talked about. Now, it's not. If I'm having what I term as a 'Parkinsons day' he helps where I need a bit of help. Otherwise, life goes on, pretty much as before. We've just made some adjustments. I asked myself if I would stay if he was the one with PD and the answer was yes, of course. Why would I leave?

R8360V profile image
R8360V

I MYSELF AM GOING THROUGH A VERY DIFFICULT PATCH IN OUR LIVES, SINCE I WAS DIAGNOSED WITH PARKINSON AT THE AGE OF 47 MY HUSBAND HAS NOT BEEN SYMPATHETIC TOWARDS ME ON THE CONTRARY IVE NOTICED HE HAS TOTALLY IGNORED ME AND MY FEELINGS, AND I KINOW BECAUSE HE HAS NEVER BEEN LIKE THIS . EVERYTIME WE ARGUE HE BLAMES ME FOR EVERYTHING, WHICH REALLY HURTS BECAUSE HE HAS ALWAYS BEEN VERY LOVING WITH ME. IT HURTS TO FEEL LONELY, IT HURTS TO BE IGNORED AND IT HURTS EVEN MORE THAT THIS PERSON IS TAKING ADVANTAGE OF MY DISEASE TO COVER HIS FAULTS WITH ME, LATELY HE HAS EVEN INSULTED ME, SO YOU SEE IM SUFFERING ALL IN SILENCE BECAUSE MY MUM AND MY KIDS BLAME ME BECAUSE OF WHAT I HAVE, TRUTHFULLY WHAT I HAVE HAS MADE ME MUCH CLEARER IN MY MIND.

THANKS FOR READING THIS.

4MCBFAMILY profile image
4MCBFAMILY in reply toR8360V

I'm so sorry! If it helps you can message me and vent or share what's going on in your life, good or bad. I'm 45 years old and had symptoms for 6 years. Which of course at our age is very rare. I'm already at stage 2 PD. It might take a couple of days to respond but I'm here for ya.

R8360V profile image
R8360V

BY THE WAY I SUFFER FROM CBD.

My wife stays with me after 6 Years of diagnosis. And after 26 years I am beginning to really question her judgment .Actually I see the garbage she puts up with work, I know I have a few more buttons I can push before I become life insurance.

4MCBFAMILY profile image
4MCBFAMILY in reply toSerenity_finaly-1

I always put a humorous spin on my illness just to set people at ease with me and act normal without the pitty look to those of my friends and family that know about my illness. I'm not gonna use the pitty card! I refuse unless it will get me out of trouble. Lol

Cbauer profile image
Cbauer

As with most difficult illness, the wives tend to stay and the husbands tend to leave. I work in the mental health field. The patients in the state mental health facility for the Elderly are all women, and their husbands do not visit.

That being said, there are certainly exceptions. I have been so very lucky to find a loving man after being abandoned by my husband. Every day I thank my stars for,this gift. I do not know how I found him, but I am definitely keeping him.

Not what you're looking for?

You may also like...

Trying to figure out what's wrong with me?

This is going to be pretty long, Basically around 2 yrs ago i had a concussion. In my life i had a...
Girth10 profile image

Since when did Parkinson's have a stage one ?

Hi could some one tell me what stage one is .I keep reading how so and so is at stage one. FIRST...
export profile image

I May Have Parkinson's, But It Doesn't Have Me!

I can't just sit still. I make it a habit to stand up and do something. And I try to remember to...

I have Parkinson's disease but Parkinson’s disease doesn't have me

That is quoting another member of the forum.None of us would choose it, but we can choose how we...

Adapting to a life with Parkinson's

The extent of your disability is related to how well adapted the environment is to your needs. This...
drjonny profile image