DBS surgery.

[Parki]

My big day is next week I am nervous and excited I was wondering if anyone else has had the surgery and what results they had thank you for sharing

[Pureann]

I had DBS surgery almost 2 years ago. The benefits I have experienced are no tremor, which was becoming more difficult to control with C/L. No longer having freezing episodes, which were also becoming more frequent before surgery. Slowness of movement has greatly diminished since surgery. Sleep has improved since surgery as well. The areas that were not affected, balance and walking gait. Also stiffness and dystonian was not helped byDBS.

Overall quality of life has improved since DBS surgery. Programming can take some time to get the correct setting. This process is ongoing as well. I see my Movement Disorder Dr every 3 months for follow-up and adjustment.

Overall, I am pleased with my results. Good luck to you!

[pangyo]

Since you have decided to do DBS.

Just Do It !

Good luck

[Pelley]

I had DBS 5 years ago and recently went through my first battery replacement. Although the surgery(s) to gain my body's acceptance of the unit spanned a year, I was pleased with the 30 min battery exchange. I dealt with five surgeries because of reoccurring post-op infections. I don't know how i persevered through that year, but I without a doubt would do it all over again. The thing to remember is it's only as good as your programmer.

[movinngroovin]

No meds No regrets!

[etterus]

I'm in the 20 month and recently met up with friends that haven't seen me since before the surgery... They are amazed at my improvements. I still am aware of the fact that it is a progressive disease but DBS is a tool that gives us a chance to control some of the degradation process. Take advantage of exercise to enhance the effects. GOOD LUCK!

[neilp02]

Hello, My name i Neil Peterson and I have had Parkinsons disease since att least 2003, when I was diagnosed with it. Throughout the years I have taken Carbo levo Dopa , Stavelo, Azilect, Mirapex , Amantadine and Comtain. I am still taking the Stalevo, Azilect , Mirapex and Amantadine. Lately I have been hsaving more problems, because of the wearing off of the meds.I can go about 3 hours frm dose to dos , but that is about it. When I am off, Im not able to walk beause of the muscle rigidity and spasticiity , which is very gruesome to deal with to say the least. Sometimes before I get back on and on cycle, dystonia will hit me and I sowmetimes have to endure this for up to an hour or more. Lastly I was just in to see my Parkinsons doctor we are going to try aand get me qualified and cscheduled for DBS surgery, because I have no further options withl the medicatlions route, unless, there should be a new drug that arises. Art any ra te, I appreciated the information shared by others, who have gone throu this DBS surgeryas it helps a lot to have an idea of what to expect.