Rytary with C/L

[Shirleyam]

Anyone taking Rytary and C/L? When do you take the Rytary, with or sometime after?

[Bailey_Texas]

Rytary is C/L only time release why take both?

[Bpetie6]

I tried rytary, but could never get the dosing to feel right. I prefer the c/l because if i eat i can take it a little earlier and stay [on] with rytary i wiuld go [off] sooner after eating and coukd be [off] for 2-3 hrs anyone else have this issue or have solved it?

[Bailey_Texas in reply to Bpetie6]

Rytary did not work for me C/L in any form is better

[annmariebaird in reply to Bpetie6]

I take c/l upon rising 5 am, Rytary 1.5 hrs later 6:30 am, c/l 11 am, Rytary 11:30 am, c/l 2:30 pm, c/l 5 pm, Rytary 7:30 pm. This works for me. I have noticed that since I started this regime, my system is sensitive to sugar and too many simple carbs. So long as I watch what I eat, I am okay. That is not to say that every day is the same... some days nothing seems to work. Hope this helps.

[Dear2016 in reply to annmariebaird]

Your collective comments on Rytary are interesting as my husband began Rytary 4 months ago, and has quickly regressed to serious end stage symptoms. The neurologist says Rytary is c/l in a capsule that slowly releases the dose and no difference in the c/l properties. She does not believe going back on senemet instead would make any difference. Your thoughts, please.

[annmariebaird in reply to Dear2016]

Everyone is different, of course, and whatever you do, please find a doctor to help you. What would I do? I was diagnosed in 2002 and have found that sometimes you have to take these things in hand and exert some control over your own (or your husband's) body. After 4 months on Rytary combined with Sinemet (the Rytary just wasn't enough by itself) I was having extreme fatigue. I talked to the company that makes Rytary, I talked to my neuro, and I did a lot of research. I decided to completely withdraw from Rytary slowly. I was still taking Sinemet, but it was a hard 7 days. Then I added the Rytary back very slowly until I could function. Because Rytary is still so new, no one (docs, big pharma, my pharmacist) really knows how this is going to impact your body. I am doing pretty darn good on the combined sinemet/Rytary regime. I have been through four neuros before my current doc, who is ok, but has a lot of patients, so I get some help, but not a lot. Let's face it, no one really knows much about Parkinsons, so I figure I must be at least as informed as the "experts". I watch my body's chemistry like a hawk. How is the Park body affected by sugar, too many simple carbs, a bad night's sleep, and the worst enemy of all - stress. And of course, I have to say that your husband quick regression could just be how his Parkinsons has decided to change. BUT - you have to be his mentor and demand what you think might work. Give the Sinemet a try - ask the doc to help you do that. If he says no, maybe he needs to be replaced. If I can help further, let me know. Annie