Rytary with C/L

[Shirleyam]

Anyone taking C/L and Rytary? If so when do you take the Rytary. My husband is taking it 1/2 hour after the C/L. Wondering if he should wait a little longer.

[Bailey_Texas]

why both contact your Doctor you may have not got correct dose instructions. I have not taken them together. They are the same drug. Rytary is just a time release version. Taking together should not be a problem.

[paddyfields]

Perhaps the Rytary was for the nighttime - any problems with pain and/ or insomnia at night. I'd like to take a recorder into consultations with specialists as you can so easily miss things or not realise their importance. Not that that is a problem with my neuro once a year as he is a man of exceedingly few words.

[Donzim]

Why is he doing that? Rytary Is supposed to last 8 hours. The periods can be tweaked a little to account for usage. For example, if he takes it at 6am as we do, and then exercises before his next dose at 2, then he may have used it up faster and need it a bit earlier. We backed up to 1pm because the effect of dwindling dopa for him is nausea and unacceptable. That means if course that his bedtime dose at 10 is off. Also we have to account for Sundown Syndrome and his usual lifetime predisposition of having a sinking spell between 4-6. To fill in the gap, he takes a small amount of regular, non-ER 25/100 c/l. That gets him through dinner without nausea most of the time and lasts until bedtime when he gets the last Rytary. His Rytary dose is high...3 625. 3x daily. I have recently reduced that a bit by not using all the contents of one of the caps (he takes the granules in applesauce due to swallow issues). I do this because he is now 1) very skinny and 2) he is not very mobile due to a heart condition . I believe that people metabolize at different rates depending on their biology, weight, degree of mobility and the time of day biorhythms.

Watch and use your common sense. If you have a question about the Rytary, you can call them. I did on a different subject and happened to tell them how the neurologist was prescribing use (using it like Sinemet) and the guy almost came thru the phone. Straightened me out, wanted to know name and number of the dr. Guess they straightened him out as well.

[horsplay]

Here is how I take my rytary :

***DISCLAIMER ***

I have had a gastric bypass so I don't absorb meds normally. This is what is working for me. Use it as food for thought.

First, I don't lead a scheduled life. I start my day when I want or need to. So, this being said I may wake up at 7 but not need to get going until 9, I wait to take my meds around 8 or 8:30. I can function better in the morning than at night (I just move really slow). If the muscle cramps are bad, I'll go ahead and take it. My first dose is 3 of the 23.75/95 capsules (the smallest). My system does not absorb the larger capsules.

Second, I can feel when it's time to take the next dose. For me this is a gradual coming on of my internal tremors (hard to describe, but kinda like a vibrating feeling). This is anywhere from 3-4 hours after the first dose. The time is affected by stress, activity level, heat and so on. This is when I take 2 capsules.

Third and fourth, sometimes fifth depending on how long my day is and how the meds are working that day. Like the 2nd dose, it's by feeling, I take 2 capsules.

This is what is working for me. I have the approval of my regular neurologist as well as my movement disorder doctor for this regiment. From my understanding, finding the best dose for rytary is trial and error. Most people aren't willing to be flexible and most doctors don't understand how to fine tune the dosage.

I started on rytary the day after its was released. Before rytary, I was miserable. I was taking sinemet every 1 1/2-2 hours. I would have the big surges and huge crashes. When I went to see my movement doc, I was taking 4 capsules 4x a day, for a total of 16 capsules (I don't feel like calculating the milligrams). Now at most I take 11 capsules, usually only 9 per day. This is how I am able to reduce my dyskinesia. As you can see this is a big decrease in the amount of meds I'm taking.

So to sum it up, be open to suggestions and be willing to work on it. The key here is to know how you're feeling. Also, have a good doctor as well as a movement disorder doctor. Have good communication with the doctor and hopefully you'll be able to find what works for you. I highly recommend a movement disorder doc, they know more about the dosing of rytary.

[ancee]

i was prescribed rytary (48.75-195) to be taken 3 at a time at 4 hr intervals. i was still fading before the next dose. he then said to take 1 CLD 2 hours after that to bridge the gap. i still crash by evening. this was from the Mayo clinic. I don't know what to do.

[Bailey_Texas in reply to ancee]

Hello ancee

Rytaty does not work for every one. It worked great for a couple of months then i would crash at 3 hours of my 4 hour plan. Not just fade but total crash. I could not walk or hardly move. I went back to C/L and am doing fine. I take 1 50/200 er and 1 25/100 every 4 hours 5 times a day. 5am 9am 1 pm 5 pm 9 pm and 1 25/100 in the middle of the night if i wake and 1 azilect,

1 6 mg requip 24 hour 1 time a day.

i have very little down time and very few side effects

Keep trying and you find the right dose for you it tokk me 9 years to get it right. I had good and bad times during that 9 years but this is the best and the longest i have been.

[ancee in reply to Bailey_Texas]

I am going to see neuro on Monday.. I will ask him about that. I don't really like this neuro but he's my only choice right now.. This is so hard for me, I just want to give up. Thanks so much for answering me. I'm not sure how to talk to people on here.

[Bailey_Texas in reply to ancee]

Just type we will answer

Just reply to a reply and we get a message or you can ask for a email if you prefer

Never give up. .

Give me some stats

age

how long with Parkinson's

Symptoms

i will send you a message with my email

keep trying i have been fighting 10 years and am winning at this time.

[annmariebaird]

Never give up. I have had times when I figured that I would be in a nursing home very soon, and then poof it gets better. Poof! Who knows why! I think the body is constant rearranging what it needs when you have PD. Keep fighting the fight!

[mistydog1]

I've been taking Rytary since January I had up the dosage strength at first to 25mg/145mg. I started on Rytary because Sinemet seemed to be causing me painful severe dyskinesia. I now take one Azilect at 6am with my Rytary after that I take my next dose at 11am and the third at 4pm. So far I have been doing and feeling great!