my experiences : Ken Giuffre, MD from John... - Cure Parkinson's

Cure Parkinson's

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my experiences

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Ken Giuffre, MD from John's Hopkins ~ quora.com/profile/Ken-Giuffre

I am a doctor and have had Parkinson's disease for 7 years diagnosed and 12 years total. I made two campy video animations that describe my experiences through the character Dr. Marshall Davidson.

1. Early-onset Parkinson's Disease: One Man's Account

youtu.be/1XIjh7tACxY

2. 10 key non-movement symptoms of Parkinson's that everybody ought to know about

youtu.be/h78x80xAMEk

4 Replies
Angelo65 profile image
Angelo65

I liked , very informative. Some new facts I did not know. Also entertaining. Thanks doc. 

Esined profile image
Esined

I was diagnosed 4 years ago. So thankful i only have some of these symptoms.  Very good. Thank you.

cabbagecottage profile image
cabbagecottage

My husband was not diagnosed with Parkinsons until he was 72 .. He is 82 now and advanced .

We met in early our  twenties and he told me before we married that he would get nightmares and a poor sleeper . Had been more or less since a young boy . His mother and father use to shout at him to be quiet and get back in bed " fell down the stairs one time   .  They took him to their GP who told them his brain didn't switch off !!.

Once married I soon got use to it and I would  reach out and calm him . 

He worried most evening before he got into bed . We just lived with it ..

We all just get use to little things in our lives that might irritate you , you learn to live with it . 

Never able to stand in  queue , I though he was just impatient , he would easily get impatient ,  We just lived with it. . he wasn't and still isn't a nasty man and funnily enough at our first appt with the consultant he mentioned he had noticed himself how much more patient he had become.  I suppose that was the apathy had kicked it .  It had some for years but when things happen so gradually you dont notice it .you just live with it ,

Whenever he tried to anything with his hands ,  mending something , using a can opener .putting anything together  he found all that very hard . 

I use to tell him he was mechanically dyslexic .

He signed his post office saving s book and they wouldn't pay him out told him It wasn't the same signature.  He couldn't walk UP a slope unless he pushed himself ,  couldn't go slowly .

The only thing he ever complained about was  very painful shoulder or sciatica . 

All this was happening in our twenties    We just loved with it . I didn't know any different he had always been like it .

Other than the impatience and being an awful worrier he would also obsess . It wasn't a problem to me . I just for on with it 

He slowed down in his sixties and didn't want to mix as much , always had been very sociable .  He suddenly got anxious and  even afraid  . 

We are atill continuing  to live with it but it is very much harder now of course . 

Th signs had been wth us from the start but we didn't have an idea it was anything other than normal .   This is our normal now .

  

Angelo65 profile image
Angelo65

Nice to see you've lived , loved & stayed a team. Credit to both of you. 

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