Dyskinesa

[Kachimom]

I am so tired of struggling with Dyskinesa. I look just like Michael J Fox with all the gyrations. Head bobbing, shoulders jumping and a grimicing face. HELP. ANYONE?

[soup]

What have you tried?

[djbk1111]

Amantadine helps

[Jocee]

kachimom, For me, dyskinesa is caused by over medicating. Try taking 1/2 a pill instead of a whole, for example. Start with once a day. Or talk to your doctor.

[bachcla]

My wife had similar problem, and her new doctor recommended she reduce the dosage of levo-dopa in thirds, then take it three times a day instead of one. Same amount of total dosage, but less at each time. It helped. Claude Bachand.

[Melodysam1890]

I had the same problem, predominately the right side - my shoulder and leg had a mind of their own - my neurologist tried Rytary - and after a few days I noticed less movement in my shoulder and arm and leg - however, standing for any length of time (over the sink doing dishes, etc), I find that a slight movement still exists with my leg - but it's nothing like it was in the beginning ... Good luck - I know how devastating on so many levels this uncontrolled movement can be ...

[gilesyassin]

I had a lot of dyskenesias which have been lessened both in frequency and duration now that I am taking only Sinemet. These are related to your medicine so what medicines are you taking?

[etterus]

Are you tremor dominate or PIGD (postural instability, gait disorder)? I'm the later and the only thing that helped me was DBS. My dyskinesias were bad enough that I was Weighing in at 138 lbs due to the relentless motion that burns calories all day long.

[mistydog1]

I was having the same problem, uncontrollable dyskinesia after taking my med. My doctor change me to 1/2 a tablet of Sinemet every 3 hrs- 4hrs. and 1 Azilect in the morning. Much better now only a sight tremor if at all. On the occasional bad day when the Sinemet doesn't seem to work, I will take 1 full tablet then continue with taking an 1/2 after that.

[llwwd in reply to mistydog1]

Do you know about how long after you took your meds that the dyskinesia would start?

[schum]

Dyskinesia was bothering me so much, and it irritates me that it is related to the meds, not directly to PD. I was taking Sinemet CR 25-100, 4 a day. I changed partially to the Sinemet 25-100 that was not controlled release, for half of the dosage. I think the CR pills were releasing too much medication at a time during the day for my needs, and caused the “shoulder roll”, and made every task difficult. Changing to the regular during the day helped me. I take the regular Sinemet 25/100 in ½ pill dosage 4 times during the day, for a total of 2 pills; then the controlled release, 2 pills at bedtime. It basically stopped the dyskinesia, and I’m sleeping well, yet I am still taking the dosage that my health provider recommended. I also take 2 Amantadine a day, but found that the generic didn’t work as well as the original (which is a red capsule).

[Sharon1945]

I TAke 1 100 mg amantadine 3x /day & it certainly helps my dyskenesies.

[Sharon1945]

I take 100 mg of amantadine 3x/day . It really helps with my dyskinesias.

[JWebb994]

My dyskinesia is more closely related to a wearing-off than overuse. Happens primarily at night when I am on the CR medication.