WOW JupiterJane! Is that your own writing??? If so, you certainly aren't lacking in talent for powerful self-expression. I suspect your graceful verse sums it all up for many of us - thanks for posting
Finding meaning is our lifelong work, (for all of us), except an illness makes this task more pressing. Especially fortunate are those, who like you, find meaning and purpose in something like poetry. Bill Moyers used to do lots of programs on poetry and poets and wrote a book on poetry called, The Language of Life. And indeed it is.
I think writing, poetry, prose, journal writing is very helpful. Research shows that just writing how you feel each day, the good the bad, the ugly things we don't want to say to another but yet need to be expressed somehow), helps us regulate our mood and give us a sense of competency that can carry over into taking care of ourselves.
You have a unique talent in being able to express feeling in this way. i was so happy to see you back because we need people like yourself. I frequently visit your profile to re read your poetry so please stay with us. I only wish I could reply along the lines of Henderson Heywood ( another inspiring and very creative writer ) whom I follow. You both express your struggle in very different ways but reading between the lines, the battle is the same one we all share in.
I have always expressed myself through poetry, the words pouring out of me like blood from large ,jagged cuts. For the past year I feel like there is tourniquet around my brain, squeezing, chocking my thoughts, my words, my feelings. I feel lost.
I'm so sorry you feel lost, JJane. Your poetry is extraordinarily powerful. You are gifted. One of the things I'm struggling with is that I didn't expect to face these things for the rest of my life. It's all very hard to accept. There really aren't easy words for it. No wonder they don't come fluently, let alone the dopamine problem.
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How I Stopped Dying Inside and Started Out-Thinking Parkinson's Disease
I danced last night
