The past two years I've been diagnosed with APS, DVT, Heglund's deformity, MS and PD. The last MD added hypertension to the Dxs because I blew 150/110 at my last exam. So now I've added rosuvastatin, metopropol and 81mg aspirin to the daily PD treatment: Rytary. But at home I can't get my systolic over 110. The DAT scan proves I have PD.
But could white coat syndrome affect the DAT scan as it affects my BP?
Yes, white coat syndrome is real and prevalent for BP, but not for DaTscan.
Statins (rosuvastatin) can have significant adverse effects and are of no benefit unless a person actually has cardiovascular disease. I wrote about statins here:
When Good Doctors Prescribe Bad Medicine:
I also question the use of a blood pressure lowering medication if you cannot get your systolic over 110 at home.
I suggest making your physician aware of your usual blood pressure and get agreement on not taking those prescriptions, since you do not want to be labeled as noncompliant.
Agree with rescuema that whitecoat syndrome will not affect DaTscan.
I've read that statins deplete the body's CoQ10 levels but haven't read what that causes. So I take daily CoQ10 just in case. I don't seem to have muscle pains from the statin. So rhabdomyolysis hasn't happened. It's on the list of complications from statins but it's not common.
Statin inhibits an enzyme for CoQ10-ubiquinol biosynthesis. You'll be better off taking ubiquinol as older adults have trouble absorbing/converting to the active form. Avoid it near bedtime since it may cause insomnia and take it with a fatty meal.
I've been taught from recent medical appointments that the most accurate way to do BP these days is have a machine that will take 5 of them automatically at certain intervals and use the average, while you sit up and keep your feet straight and on the floor. At the docs office, if the one measure they take looks out of some norm or expectation, policy dictates turning their machine into mode to do 5 automatically. Maybe if they do that where you go, and you can do that at home...maybe whichever is an artifact discrepancy could be seen. Or ask them to not wear the damn white coats. And no good looking nurses.
Very very very doubtful that your DaT/SPECT scan was influenced by anything but your brain.
Your Z scores by brain division will normally differ, but overall you have PD if your Z scores are consistently to the left (towards -3.00) of minus -1.61 to -1.68 depending on the software used by your radiologist.
Any Z score in the -2.75 to -3.00 RANGE (stage 3 or stage 4 PD) in the 2 putamina (left or right posterior) implies your neuro is absolutely correct about your PDdementia or LBDementia.
sharon
Test your response to your PD meds by putting one real and one placebo (use a vitamin pill or something) in a container. Close your eyes and take one, don’t look for a few hours at what is left and see if you guess right. It’s unlikely that you have been misdiagnosed, but the brain is open to suggestion!
My husband has to take his BP at home as it goes crazy in the dr’s office.
Anyone else have a Skin Biopsy?
Exercise & PD
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