Hi, anyone with PD not on medication and ... - Cure Parkinson's

Cure Parkinson's

26,181 members27,513 posts

Hi, anyone with PD not on medication and treating by alternative method?

DS310 profile image
8 Replies
Written by
DS310 profile image
DS310
To view profiles and participate in discussions please or .
8 Replies
honeycombe3 profile image
honeycombe3

I was diagnosed 9 years ago age 55. I am fortunate in that I was supported by my consultant, PD nurse & GP through 2 years of alternative treatments/therapies before starting meds & I have been actively involved in my PD management. I think this gives me a broader balance regarding treatment regimes than many PwP. A word of caution: it is easy to become immersed in one approach to PD, especially when it reflects one's emotional/ethical beliefs & a great commitment is made to it. Despite using alternate (natural) treatments & therapies including hypnotherapy, homeopathy, acupuncture, Yoga, T'ai Chi etc my condition deteriorated until I was in constant pain, my body twisted in from the left & I could barely walk. I reluctantly started combining conventional meds with these therapies & now most of the time people don't realise I have PD.

navyrat profile image
navyrat

I gave up my pharma meds a year ago in favor of natural Levadopa and an extreme Ketogenic diet with Coconut oil, 3 hours of exercise including breathing routine and I moved to a warm area that has clean air (Florida). I have cancer as well as PD and am holding both at bay. My VA medical team supports my effort with guidance and frequent monitoring and are excited with results. It works for me but it takes a lot of effort and planning. I feel as well as I did 20 years ago and have had PD for 10 years. I did a great deal of research before making the change and I had a great Neurologist who supported my efforts. PD rears it's ugly face usually when I am stressed about something or I stray from my routine and lets me know that I am not cured, only controlling it!

DeParkiePoet profile image
DeParkiePoet in reply to navyrat

Way to go Navyrat! your story is inspiring...

PatV profile image
PatV in reply to DeParkiePoet

meds plus--taking care of ME and my pd etc. is my full time job.

JohnPepper profile image
JohnPepper

Hi DS310. Yes! I took Eldepryl for 10 years, but due to doing exercise and learning to use my conscious brain to control my movements and getting rid of serious STRESS out of my life, I have been able to live a normal life for the past 10 years without medication. Nobody wants to look into this because, in my opinion, it is not good for business, if people were able to overcome Pd and no longer need medication or treatment.

Good luck

John

DS310 profile image
DS310

Thank you all for your insight.

hilarypeta profile image
hilarypeta

Howard shifkes recipe for recovery

Neupro (rotigotine transdermal system) only if you must and only after YOU do thoroughly research the benefit or not of various medicines, their side effects, the period they are effective and alternative treatments. /do not simply rely on your doctor's advice.

Myself, I also chose CO and ketogenic diet. The diet was changed to include more carbs, berries/fruit and greens.

kale, cabbage, broccoli, cauliflower, brussels sprouts, collard, onions, liver (organ meats), seaweed.

Vitamins: Flaxseed 1000mg, C 500mg, E 400iu, D3 5000iu

Coconut oil: 6 tbsps per day

Not what you're looking for?

You may also like...

Newbie, not on medication, seeks advice on alternative therapies to manage PD please

Hi All, I am looking for some advice please on alternative therapies, especially from anyone like...

Has anyone with PD changed medication, when the initial one was not working?

Hi, my dad has Parkinson’s disease and was dx in 2018, he’s tremor dominant and started c/l last...

Pain and Weakest on side affected by PD

Is there anyone who suffers from pain in their arm from PD? It feels like a muscle kink and...

Carrying on with Art with PD?

This is my husbands latest project. All his own drawings which he loves doing, now adding colour....

Maybe it is not caused by the PD

I have been in a down ward spiral for over a year, no energy, no drive, done. If I dropped...