effectiveness of neupro.: - Cure Parkinson's
effectiveness of neupro.
I will not use this again, I used it for just over 12 months, at first I had much more energy, but within six months I was having skin problems, and this summer I found myself drifting off to sleep without warning in company.
I was mortified to do that in other peoples company . half way through conversation as well.
My husband has Been on them along with Sinemet , for about 4 years . We thought it was helping for a while but more and more he is , I call it switching off !! , I did even stop them for a week but gott afraid and started again .
We don't get much help as far as medication .
He is now w 79 and it all came to a head when he was 70 , I once to
d them he was getting hallucinations but since stopping -Amitriptyline and amlodopine he hasn't been bothered with them .
What other meds do u take
Yes that was one of the other problems with Neupro patches seeing things that were not there. I do wish you all the best with medication
Do you have a dedicated Parkinsons nurse specialist you can call up when in need?
No we haven't had that luxury in all the seven years . We saw a Dr at the care of the elderly who saw Parkinson's people he has retired and we haven't had an appt since last May when we saw his side kick . I did give him a ring through the last Secreatary but no reply . There is a Parkinson's nurse but he told me she is very busy . The GOP who had been a great support but cannot help with the Parkinson's he he moved last Xmas so I am the doctor now .!!!!!!!!! I am going th e mail the nurse myself and she if she can help . I cannot even get him to the hospital anymore
John isn't having the problem of seeing things these days , at one time he would see shadowy figures in the acorn hair opposite him or a dog pass , At night some more nastier ones he would lash out to hold them back . That doesn't happen any more
Think the cause was Amitriptyline , had a v bad reaction to digoxin for his heart really awful with that one . Cannot take co co Damon or even Kwells which was prescribed for drooling . His drooling is dreadful it's continuous , must drive him absolutely crackers . He never ever complains though . He is an angel , I have had him for over 55 yrs so I am not giving in without a fight . Didn't ever think I would find the strength in a million years .
You are a blessing to your husband. I am so thankful to have gotten my hubby off the MEDS that caused all the HORRABLE side effects, it was so bad. I am needing to look into getting a lift to help me care for him. We have been married almost 58 years, God gives us the strength to help us Cabbagecottage. Everyday is a blessing that we have them, my heart feels for all those that have pd, God help to provide better research for all with pd. Hugs to you dear lady, keep strong.
Hello there .prayingforacure, that's good name . We have been married for 55 years . I can't say the meds have ever been much help for my husband , it's difficult to know now how it would be if he came off them although he is now down to Sinemet 110 x3 along with the patch , It was at my request that they reduced his dose a year ago . . Was your husband any better when he did stop the meds . What was he on .
my husband has only ever been prescribed Sinemet up to Sinemet Plus and the Patch at 6mg . he also has atrial fibrillation and takes warfarin Bisoprolol and Forusemide .
I have this evening just e mailed the support worker for our area to ask if she might visit us or even get a visit from the Parkinson's nurse , we have never seen one in all 7 years .
He goes from bed to wheelchair to armchair . We have steps at the front of the house and it would be very difficult to get him to the hospital for an appointment these days . We started having carers in 3 months ago . I had to give up trying to get him into bed safely he would flop back in the bed and I couldn't raise him . . It is the only thing I cannot do . I just about manage to transfer him form chair to chair . He uses s commode now and the Ot has installed a hoist , he had a hospital bed arranged by the district nurse . If I could move the hoist with him onIwouldn't need the carers .
I think if they had installed a ceiling hoist I would manage without any carers although I realise if ever I were ill or poorly at least they will be coming in .
Where do you live . We live in Wales and are fortunate at the moment that however much savings you might have it will never cost any more than £50 week, however many carers or times they call on you . It did take a bit of getting use to having them turn up not knowing who might come through your door . In fact in the three months they have been coming we have had 36 different ones. !! Wonder who will turn up tonight lol.
So glad you are able to have someone to come and help you. I am not able to get any assistance at all, we are in the U.S. There is agencies to go through and very costly a friend pays almost four thousand dollars a month for eight hours a day, he has bone cancer and cares for her when there not there. My husband isn't on any pd MEDS now at all.
That is so difficult . In England they pay a lot more . We live in Wales and seen to get more finically help , that is at the moment . I am sure you will find your way around things . I know how hard it is though
My father has PD, and I have been his caretaker since May 2015. The neurologist I took him to said Botox is now being used for drooling. The side effect of botox is dry mouth. But my dentist says dry mouth is very bad for your teeth. We have not tried it. Has anyone else heard of this?
Cabbagecottage,
I viewed this conversation because I had tried the Neupro patch at one time. I want to say how much I admire your devotion to your spouse, that we could all have someone who cares so deeply for us! I admire your dedication to your husband. Susie
I am presently wearing the Neuropatch..along with taking Sinemit...and Artane...!f I dont take Artane tremors are really noticeable but I have a clearer mind. If I take it (memory lapses) but no tremors... catch 22 ! I also tried coconut oil....not much effect that I can tell.....most people don't know symptoms of PD....before I was Diagnosed (Oct 2012) all I knew about it was the tremors !!
I find the Neupro patch most effective. I take 6 mg.
Susie01 . I have my moments obviously but what else would I be doing . Although I know he wouldn't be able to do the same for me I know he would do his very best .
you are right Jimmyteaster. We thought the same and it's been quite a learning curve .
My husband seems to have ALL THE SYMPTOMS and in hindsight has had them for very many years . Like so many others he had just been digging in and getting on with it .
He didn't mention that he thought there was something not right walking became a big problem While out shopping he would stop and suggest I go and brows in a shop while he sat and waited for me outside . Got quite impatient if waiting in a queue .
I bought some coconut oil from the health store but my husband wears dentures , his mouth would become so slippery from the oil he couldn't keep his dentures in lol not really funny ! I read that you can by it in capsuLe form so will look and try it again .
What does Artane do they have never ever tried any other med for my hi
stand other than Sinemet and the Patch .
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