I sat down here to talk to us, and then my old companion Fatigue came and sat on my head!! So I will share my learnings soon. Now I need to lie down and leave you all to ponder on Fatigue and all its footprints. Sweet dreams, everyone. gran5- By the way the pic is me participating in an adaptive ski program. Last year on a sled this year I'm trying a ski bike. What a hoot.
How did I get here #2: I sat down here to... - Cure Parkinson's
How did I get here #2
Hey Granpa(?). I too used to live in NYC, now Sarasota, Fl. Is that pic in Taos? It was on to do/ski list before I got "Good days, bad days" =PD. Fatigue is huge for me also. I have restructured my days to accomodate my wakefulness, Awake at 4-5 am nobody else is, except the PD nightfolk...that is. I meditate twice a day to relax and recuperate from lack of sleep=fatigue=feeling lousy. how long have you had the Dx?
Good Morning, I must tell you that as I am missing work for the second day in a row, I find some comfort in reading the posts from Jom9696 and gran5.
Seems a silly thing to say, its just that as I sit here feeling like a lump of sh**,
I am reminded by fellow sufferers, that it is not my fault. How does one keep any sense of dignity when ups and downs are so out of your control?
Dignity is highly over-rated!! I battle with my ego. I once was agile and dexterous. Now, I have spiled, broken, dropped more things in a month than I did in years BPD (before PD). Sometimes I sit on the floor and giggle. There is nothing else to do at this point. Maybe we should start a humor blog. Anyone care to contribute?
Well, Mccshe, possibly that has as much to do with age as it does with PD. At 72 I have gotten to s place where I rarely judge people (at least not in their faces) so it is time to do that for myself. Let's discuss that some more and maybe I can help you as you help me (theoretically) right nowPD has taken over the drivers seat and I have to relinquish the keyboard cause i am doing more rewriting than writing. Peace