How PD affects me...: Hi all This is a link... - Cure Parkinson's

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How PD affects me...

Ianfrizell profile image
7 Replies

Hi all

This is a link to my vlog about how PD affects me.

youtube.com/watch?v=y2zWEaZ...

Cheers,

Ian

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Ianfrizell profile image
Ianfrizell
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7 Replies
Seamus6 profile image
Seamus6

Keep up the good work!

... Wondering if you had any luck obtaining Exenatide? .. Saw my PD nurse this week, she was very upbeat about it - I think it's now in Phase 3 trials.

Ianfrizell profile image
Ianfrizell in reply toSeamus6

I'm still trying to get exenatide. My London neurologist was supportive and was trying to sort it out for me. I'll chase her up when I chase the speech therapist!

Cheers,

Ian

S70AWD profile image
S70AWD

Thanks for an honest and heartfelt assessment of your PD status. Knowing what others are going through helps, makes me know I am not alone.

Enidah profile image
Enidah

Thank you for sharing that, Ian. It does help knowing we are not alone in this struggle.

Despe profile image
Despe

Hi Ian! Keep up with the Thiamine. It takes a while to see improvements, so don't give up. :) You're an inspiration to all the PwP.

M1tz1 profile image
M1tz1

Like Despe, I think you're an inpiration to those who contribute to HU. Hang in there, Ian. Praying for you.

JANVAN profile image
JANVAN

Hello Ian

Sorry to hear that. What I want you to ask .....so you don't use any of L-Dopa medication ?

Do you then use mucuna pruriens ?

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