It's been 25 years with chronic pain and now too much to take. I was initiated diagnosed with a mild case of Lupus, then Fibromyligia and NOW seronegative RA. I am arrived at this point where I can't function mentally and psysically anymore. I have become so drepressed about the deteriorating condition. My hands, feet and recent neck and shoulder pain take over my life and I had been trying to manage pain by exercising but it isn't enough. The MRI shows also severe degenerative disc desease C5-C6 and they say the neck and shoulder pain it isn't related to the RA which I am not certain of. I listen to the way I feel and that tells me that some illness is attacking my spine and it feels like I am being slowly poisoned. I have had 2 spinal nerve blocks with little improvement.
I had been on Gabapenin for 3 years that helped for sleeping but the PAIN during the day is REAL and unbearable now. My Stanford Rheumatory Doc has tried Predinisone (no benift😭) now I got my first injection of Humira (nothing yet😔) I read some patients get immediate response and some within 2-3 month)
I just want to move beyond this pain progression. I am a busy mom of three kids (7,9,12) and was looking forward to get back to work (which I have to re-design according to my limitation) as it isn't only a great pain distraction but a human right and dignity to be able to have access to a career path again.
Being a chronic pain patient not only are you a guinea pig of trial and error drugs for years but you are disconnected socially and occupationally disadvantaged. There are a lot of limitations living with the chronic condition but there has to be a platform for those individuals to reconnect and find employment that has flexibility and is rewarding. I would look forward to anyone for great suggestions and ideas.
I am a physically strong trying to manage my health to the best ability however the mental exhaustion and challenges take a toll and I am asking for help.
I came to to country on my own 30 years ago and put myself through college. I have 3 degrees and worked in retail buying, also in p/t medical sales. Besides focusing on my family my biggest interests is teaching kids art and German. I am an artist and enjoy organizing parties/ events.