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Canadian Organization for Rare Disorders

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Agenesis of the corpus collosum

My son has Agenesis of the Corpus collosum I was wondering if there is anyone else with the condition, or a parent of a child ?

My son has Agenesis of the Corpus collosum I was wondering if there is anyone el...

Bubu6

•6 months ago

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How long to wait and see

Hi. I'm sick since one year. I just paid a doctor to run more test because my gp don't want to. Everything came back negative. The doctor told me to wait for...

Hi. I'm sick since one year. I just paid a doctor to run more test because my gp...

Shadow35

•2 years ago

2 Replies

Hearing voices

Hello every one , is there anyone experience hearing voices from air conditioning , Walls or even the sky , I know it's sort of mental disorder, please if...

Hello every one , is there anyone experience hearing voices from air conditionin...

Karole2021

•4 years ago

1 Reply

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OFD Type 1, XXX Chromosomes Disorder

I have Oral Facial Digital Syndrome Type 1 with XXX Chromosomes. It causes fatality to male fetuses, of which I had 9 miscarriages and 1 stillbirth. Diagnosed...

I have Oral Facial Digital Syndrome Type 1 with XXX Chromosomes. It causes fatal...

Rutiqazuti

•4 years ago

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Who else has adrenal insufficiency and MS?

In 1974 I was tentatively dx'd with MS. in 2004 following a collapse exiting an elevator and consequent MRI, the appearance of periventricular subcoritcal...

In 1974 I was tentatively dx'd with MS. in 2004 following a collapse exiting an...

Bodega1939

•5 years ago

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Chronic cough and hypertension in 20 year old

I was diagnosed with bronchitis in November of 2018. After 3 rounds of steroids and antibiotics I finally got better. Once the new year came in I started...

I was diagnosed with bronchitis in November of 2018. After 3 rounds of steroids...

greyarea11

•6 years ago

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PMR

Wondering if there is a thread on this site concerning PMR and prednisone tapering experiences

Wondering if there is a thread on this site concerning PMR and prednisone taperi...

Evercurious

•6 years ago

1 Reply

Undiagnosed and struggling

Hi, I'm new to this group. Just saw a neurologist/epilepsy specialist as my neurologist wasn't sure if I was having seizures but they weren't caught during the...

Hi, I'm new to this group. Just saw a neurologist/epilepsy specialist as my neur...

BELAwesome

•7 years ago

1 Reply

EHS Or ES

Dear friends I hope you're all doing well Please anyone whose aware or knowledgeable enough about Electromagnetic hypersensitivity disorder please please...

Dear friends I hope you're all doing well Please anyone whose aware or knowledg...

Noel44

•8 years ago

1 Reply

Analysis results:

If I have these given analysis like below, what does they exactly stand for? MCH˭ 24.9pg Fe˭ 23 Ferritin˭ 3.8ng/dl vit B12˭89pg/dl Nitrogen bridge˭ 5.61mg/dl...

If I have these given analysis like below, what does they exactly stand for? MCH...

evis

•9 years ago

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Anyone with any INFO on RARE condition: Paradoxical Parasympathetic Syndrome (PPS) an ANS (Autonomic Nervous System) disorder

Upon standing, walking, bending, etc. my HR increases into the 150 -170s'. My B/P remains normal ( in low range for me). The 'fight or flight' response is...

Upon standing, walking, bending, etc. my HR increases into the 150 -170s'. My B/...

YaYaMermaid64

•10 years ago

16 Replies

I bought Spectrum organic Virgin coconut oil. It is semi solid. Is it okay to take this?

michaela13

•10 years ago

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i have been having a sharp pain bottom right of my ribs that every time i bend it hurts what does it mean? this pain started last night

jazmin_

•11 years ago

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Hi everyone, we are a group of university students volunteering at a newly formed cancer association and we were hoping to receive some help

Hi everyone, We are a group of University students doing a volunteer project with a cancer charity, and we’re researching the methods that charities interact...

Hi everyone, We are a group of University students doing a volunteer project wi...

VolunteerCancerGroup

•11 years ago

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How can patients and families help raise awareness about rare diseases among the general public?

Each rare disease affects only a small number of individuals but collectively we are almost 10% of the population. But there is very little awareness of rare...

Each rare disease affects only a small number of individuals but collectively we...

dwr0522

Administrator•11 years ago

1 Reply

Ask a question in this section

Often it's the best way of sharing is through specific questions and answers. So if there's any particular question that someone in this community could help...

Often it's the best way of sharing is through specific questions and answers. So...

matt

•11 years ago

1 Reply

Introduce yourself!

Welcome and please make yourself at home. The goal of this community is to provide a place where you can share experiences, support, and information about the...

Welcome and please make yourself at home. The goal of this community is to provi...

matt

•11 years ago

5 Replies

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Posts - Canadian Organization for Rare Disorders | HealthUnlocked

Canadian Organization for Rare Disorders

Agenesis of the corpus collosum

How long to wait and see

Hearing voices

OFD Type 1, XXX Chromosomes Disorder

Who else has adrenal insufficiency and MS?

Chronic cough and hypertension in 20 year old

PMR

Undiagnosed and struggling

EHS Or ES

Analysis results:

Anyone with any INFO on RARE condition: Paradoxical Parasympathetic Syndrome (PPS) an ANS (Autonomic Nervous System) disorder

I bought Spectrum organic Virgin coconut oil. It is semi solid. Is it okay to take this?

i have been having a sharp pain bottom right of my ribs that every time i bend it hurts what does it mean? this pain started last night

Hi everyone, we are a group of university students volunteering at a newly formed cancer association and we were hoping to receive some help

How can patients and families help raise awareness about rare diseases among the general public?

Ask a question in this section

Introduce yourself!

Search posts

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