Upon standing, walking, bending, etc. my HR increases into the 150 -170s'. My B/P remains normal ( in low range for me). The 'fight or flight' response is triggered by the ANS upon my position change! All rx treatment has failed. Bottomed out my B/P even in the smallest of dosing. Excellent genius MD for years following me exhausted all measures and sent to Research Center to no avail. Last weekend of December 2013 ended my career as my body could go no longer. I have remained always POSITIVE as this is who I am. Knowing there is a REASON for EVERYTHING and do not question this. My MD has only 4 other pt's with this d/o all of which can tolerate rx therapy. So I am the 'RARITY IN THE RARE'! Go figure ... right! LOL Just hoping someone, perhaps may have some knowledge of this CONDITION! There is so little to NONE really to be found upon researching. I would greatly appreciate any assistance or information regarding this issue. Bless You All!