Welcome and please make yourself at home. The goal of this community is to provide a place where you can share experiences, support, and information about the spectrum of rare disorders. HealthUnlocked is a online community network for patient organizations and CORD is the very latest organization to start a community.
It's simple to get started. Please just introduce yourself in the box below. The hardest part in starting a community is getting the ball rolling so any contribution whatsoever will be valuable. Remember, that sharing your experience will help many people with rare disorders as your contributions will be archived and accessible for future visitors.
So don't hold back! Just go straight ahead and post, ask a question, answer a poll and have a look around the rest of the site.
Best wishes and good luck with the community in future.
Dr Matt Jameson Evans