In 1974 I was tentatively dx'd with MS. in 2004 following a collapse exiting an elevator and consequent MRI, the appearance of periventricular subcoritcal white matter plaques, the various dxs were determined to be dementia, a vascular problem or MS. At that time there was no reproducible way of determining if a person had MS. Since then I have been dx'd with a clotting disorder of indeterminent origin, dry eye (Sjogren's), Ehlers Danlos , psoriasis, RA, a form of osteoporosis noted as being AI mediated and and Secondary Progressive MS, etc. To top it off, after an ACTH test (and a thorough SS check out), the docs have decided I have adrenal insufficiency and prescribed hydrocortisone, low dose, administered on a cortisol circadian rhythm and "they" tell me it is yet another autoimmune disease.
I take Ampyra, a potassium channel blocker, so that I can walk, low dose hydrocortisone, and Apixiban. I have refused other medications because as I read about them I do not understand their benefit. And no one is willing to talk about drug (or food or life style) interactions of any combination of 3 or more drugs eaten or injected.
If you or anyone you know is familiar with what I am talking about I would love to hear from you. I want to know how you cope physically, mentally and emotionally with these problems.
By the way I am 80 in October so this c...has been going on for a long, long, time.
Nemaste. gwenie
