Pip : Well just an update to all those... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

1,686 members667 posts

Pip

Juliej51 profile image
6 Replies

Well just an update to all those ppl with cmt and those disgusting assessors for pip. I was assessed last year and no surprise i got no points although was previously awarded indefinitely. Anyway i appealed and after 8 long months won my tribunal in feb and just got my back dated money. Dont give up and keep fighting!! You are entitled to help don't let them bully you 😁

Written by
Juliej51 profile image
Juliej51
To view profiles and participate in discussions please or .
6 Replies
Thel profile image
Thel

well done Julie for not giving up,so many people are affected in different ways I certainly need more help now than ever my husband is my rock and he won't even claim a care allowance so good on you for perciverering.

Juliej51 profile image
Juliej51 in reply toThel

Thank you thel for the reply and i know how difficult it is living with cmt.Its so frustrating and stressfull but for me i had to fight as they were liars in their report and i believe in fighting for what i believe in!! Im so i did although nearly gave up.hope whatever you choose you get the help you deserve. 😁

tonypaul profile image
tonypaul in reply toJuliej51

Same happened to me but when I got their report I wrote back explaining how each point the assessor had put was a lie. I got the award with no appeal. Obviously they have confidence in their assessors then.

spabbygirl profile image
spabbygirl

Well done Julie!!! It'll be my turn next, thanks for your really inspiring help x

Juliej51 profile image
Juliej51 in reply tospabbygirl

Good luck hope all goes well😁

Justarose123 profile image
Justarose123

I went to neurologist, after having emg which showed slowed down results- diagnosed with

Perihial neuropathy, the neurologist did a exam he had me lift my leg backwards and it was so painful, he said, Your feet are deformed and your calves? Its congential,

I was impressed until

He diagnosed me with fibromyalgia?

I have surgery 1 yr later cavus foot structure, trapped nerve in both feet..

I mean all clues were there??

Not what you're looking for?

You may also like...

Pip

Morning everybody, I have to go and see if I can get pip today, I am struggling to walk now and my...
Prady123 profile image

PIP Advice

HI just looking for some feedback on PIP i have DLA indefinitely but have had the dreaded letter...
worried12363 profile image

PIP Assessment

Hi I was diagnosed with CMT sept 2016 I was awarded a blue badge in May and this has improved my...
jbowe1973 profile image

Pip and Charcot Marie tooth

Hi I just found out I have CMT and was told to claim pip just wondered if anyone else have claimed...
Megan23 profile image

PIP face-to-face assessment

This isn't a question its just to let anyone who might be interested know that I've just had a...

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.