Well just an update to all those ppl with cmt and those disgusting assessors for pip. I was assessed last year and no surprise i got no points although was previously awarded indefinitely. Anyway i appealed and after 8 long months won my tribunal in feb and just got my back dated money. Dont give up and keep fighting!! You are entitled to help don't let them bully you 😁
Pip : Well just an update to all those... - Charcot-Marie-Too...
Charcot-Marie-Tooth UK
1,540 members • 621 posts
Pip
Well done Julie!!! It'll be my turn next, thanks for your really inspiring help x
Good luck hope all goes well😁
I went to neurologist, after having emg which showed slowed down results- diagnosed with
Perihial neuropathy, the neurologist did a exam he had me lift my leg backwards and it was so painful, he said, Your feet are deformed and your calves? Its congential,
I was impressed until
He diagnosed me with fibromyalgia?
I have surgery 1 yr later cavus foot structure, trapped nerve in both feet..
I mean all clues were there??
Not what you're looking for?
You may also like...
Pip
I can get pip today, I am struggling to walk now and my stick doesn't really help but got to use it...
Pip and Charcot Marie tooth
Hi I just found out I have CMT and was told to claim pip just wondered if anyone else have claimed...
PIP face-to-face assessment
interested know that I've just had a face-to-face assessment for PIP. It was carried out by Capita...
CMT face-to-face PIP assessment
if, as with the WCA assessment, the PIP assessment requires that people with CMT (and other...
Support with PIP from a professional
to let everyone know that I can help with PIP assessments. I help with preparing you for the...
well done Julie for not giving up,so many people are affected in different ways I certainly need more help now than ever my husband is my rock and he won't even claim a care allowance so good on you for perciverering.
Thank you thel for the reply and i know how difficult it is living with cmt.Its so frustrating and stressfull but for me i had to fight as they were liars in their report and i believe in fighting for what i believe in!! Im so i did although nearly gave up.hope whatever you choose you get the help you deserve. 😁
Same happened to me but when I got their report I wrote back explaining how each point the assessor had put was a lie. I got the award with no appeal. Obviously they have confidence in their assessors then.