I am devasted. My life has turn up side down since I have been diagnosed with CMT.
My dad, uncles and cousin have it I am the first woman in my family to go trough this. I started to get symptons about an year ago And now is developing ..
I feel let down as I been seen since last summer by the Neurology department but I didnt get any support emotionally or I to help me to walk better with the help of Aid.
I feel very disappointed as I been refused to be awared on PIP.
As any1 been refused? I mean.. I know I should appeal.. does it gonna make a difference? This is the reason I didnt want to try in the first place. This made me feel really down. I feel so let down.