Update ...

[Ashley_x]

Instead of asking a million questions I thought I would create a post. Had follow up appointment with neurologist he says I DO NOT have cmt and only suffer from HNPP. Have no reflexes in my ankles (?) and I've to be aware of what I do that can cause pressure palsies. He was also wanting to refer me for carpel tunnel surgery (which I have declined) and have to be referred to occupational therapy. Does anyone else here go to ot?? As always I hope you are all well xxxx

[Amanita]

After my initial diagnosis with a "polyneuropathy", and before it was pinned down months later to CMT, I was referred to an OT (as well as a physiotherapist and an orthotist). She spent several sessions determining the degree of weakness and lack of sensation in my hands before giving me a pile of exercises to do daily , and wrist/hand splints to wear at night. She also strongly recommended a medical driving-assessment (which resulted in my having to buy an automatic car). After about a year she discharged me, rather to my surprise, but said I could be referred to her again should it prove necessary. This means that when the CMT progresses further and I need more help, I shall have to wait another 3 months to see her again.

[lordie]

Pardon me to ask this but is hnpp the same as cmt or different