As CLL we have a comprised immune system and after treatment mine has never gone back to normal. Yesterday (Saturday) I developed a bladder infection. I tried during the day an over the counter remedy but it got increasingly worse and in th evening I phone my GP out of hours service. This too was closed and I was told to ring NHS111 which I did. I spoke a call center. The first person went through what was wrong we me and tried to transfer me to a medically trained person but couldn't, but rang back after only about 5-10 mins. I went through the whole thing again. They then asked about a hospital I had never heard of (after talking to this person she said she was nowhere near where I lived) I told her our nearest hospital. She then said that she needed to get in touch with my GP out of hours service who would refer me to the GP clinic at my local hospital. I asked why she could not do this herself but was told its the way the system works. The GP out of service then did ring back again no long delay about 5-10mins and gave me an appointment in an hours time. She then said that the appointment was only a guide and I could not understand what she then said. My husband spoke to her as I was becoming confused and feeling increasingly unwell. He said we would go to hospital straight away as we may be seen earlier. When we got to A & E my husdand dropped me off to find a parking space. However unbeknowned to me this enterence was now closed for refurbishment and signs directed me to another enterence. I became increasingly confused (you could walk around this hospital for hours if you do not know where you are going, during the day they have volenteers who man help desks) After some time I did find the new A & E. I went to book in but as the system was new although I was referred they couldn't book me in and the had to speak to their call center to do this. i was told that there shouldn't be a long wait as I was then next patient to be seen. There are three different queues at this A & E (its a major incident center) but as I was on my own (my husband was still trying to find the new A & E and me) and other people after me were being seen I asked if I was now correctly booked in but was told yes and that I was the next patient to be seen by this Dr. My name did come up and I was given very good care and treatment. This whole saga does show up what happens in real life. Many of these things were small but togeather made a bad situation worse. I did get what I needed in the end but it was dealing with lots of different people when I felt worse and worse and more and more confused. I was luck that all spoke good English as I now find different accents hard to grasp (I should say my husband's family are Irish and my own grandmother was from Northern Ireland and I find broad Irish accents very hard to understand now) So perhaps its a case of not getting ill after hours which is unrealistic.
Last edited by AussieNeil
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