Hello, I can use your advice. I was recently exposed to walking pneumonia and two days later had a rapid spreading rash that I’ve had for almost 3 weeks now. Nothing touched it so finally did 15 days of prednisone and that’s mostly taken care of it.
Been having some reactions to Covid vaccines, flu shots, Shingrix, etc, for about 5 years, but this felt like this rash was from left field. My Dermatologist said that the body can go crazy when having CLL, but right now I’m not on meds and in remission. I even went to get blood drawn to make sure it has not reared it’s ugly head.
Anyone else experience a similar experience to this, getting exposed to a virus and your body looses its mind? Am I naive to think that I’m past the illness and that my body isn’t forever going to be impacted and that my immune system will never be what it was before CLL? I know the outcome of my experience, I guess I’m trying to make sense of “why” if there is an answer.
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meganbo
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Well that is a horrible side effect, I'm glad it's settling down. I may be just as naïve, but no, you will always be at risk. That's why as far as we've come it is called remission, or for some functionally cured.
Now I'm not an expert so don't take my word for it. And, finer minds from here may have a more accurate answer for you. However, I believe that's why the emphasis is often on vigilance in preventative health.
But, really sick or healthy everyday is a gift, and a challenge, my goal at bed time is to have at least one win for the day.
Hi meganbo, I've also developed a tendency to break out in a full body hives like rash in the last couple of years. The first time seemed to be a reaction to a drug I was given, and I stopped taking it and it resolved. The second time was even worse and seemed to be a reaction to Covid Infection/Paxlovid/Antibiotics? I was given prednisone and antihistamines and it resolved within a week.
So yes, I think my skin has weird reactions to things now that could be CLL related and I won't be surprised if it happens again.
Meganbo—My dermatologist said the same thing when I presented myself with a skin discoloration. I tend to think that his characterization covers the wide range of infections, swellings, aches that strike us. Put differently, it is what it is. Responsiveness, forbearance, luck, advancing biochemical science can sometimes tilt the scales in our favor, too. Good thoughts. Bill
Nine years into this and having been through various stages of illness and remission, I have cataloged a a wide range of skin rashes and discoloration with a bruise over my right eye lid and between the hairline and the eye the latest. A complete stranger commented about it in a coffee shop this week. I happen to be ramping off prednisone right now. My body seems to react to everything 10x so unfortunately this is something some of us deal with. Sorry!
With a diminished immune system from CLL, I get all kinds of rashes I never had before CLL. I have had shingles, poison ivy and psoriasis arthritis. I had several different rashes with B+R treatment as well. Blessings.
Thank you everyone! Rashes are a hard dose of reality that things will never quite be “normal” again. Almost gone though after 3 weeks Appreciate the input!
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Appreciate the input! 
Anyone else get this?
Does anyone get the hives?
Rash that won’t go away
Anyone else w/ CLL getting rashes? I need your feedback
Itchy skin rashes 
