GAMMA IV every 28 days.

[doc1947g]

I was diagnosed in November 7th 2019 following a bone marrow biopsy.

Was on W & W until November26th 2023 when they started GAMMA IV with 45 g of IgG (Privigen every 4 weeks.

Anybody is or was on that treatment.

[AussieNeil Partner Administrator]

Given low immunoglobulin levels (hypogammaglobulinema) often develops due to plasma cell suppression by CLL and it can eventually result in serious infections, quite a few of us are reliant on the generosity of blood and plasma donors to boost our IgG and improve our quality of life.I've documented my experience here

healthunlocked.com/cllsuppo...

Subcutaneous IgG can be done at home and saves your veins, avoids possible IV infusion reactions, plus the weekly schedule maintains a much more even IgG level. I switched to subcutaneous IgG over 6 years ago healthunlocked.com/cllsuppo...

Neil

[texigal]

hi doc… I, like Neil, am on subcutaneous infusions of Ig. I unfortunately developed aseptic meningitis with my first IVIg. so my oncologist switched to subcutaneous with pre -medication. I have generally tolerated that procedure well. I frequently have a mild headache day 2 or 3 and fatigue for a few days. It takes about 4 hrs.(30g/ 300ml). Many folks can self administer at home. However, I receive it every month at an outpatient infusion center. My IgG level is maintained at a normal level. It’s an expensive treatment ( last I checked ~$22,000) per. Medicare, plus Supplemental insurance covers it here in the US. I have not had any infections since I’ve been receiving it, except COVID which was very mild. I’m a happy camper. Best wishes on your journey.

[doc1947g in reply to texigal]

In Montreal, Canada the medication is free.

[doc1947g in reply to doc1947g]

My medication is PRIVIGEN 45g q4weeks.