low iron

[Tomich1949]

hi group,

I am having trouble with low iron levels while on Ibrutinib. Is anyone else having issues?

Regards

Viv

[annmcgowan]

Hi I have low iron on ibrutunib. My GP has me on iron tablets which have worked.

Abn

[Tomich1949 in reply to annmcgowan]

Thanks so much

[lankisterguy Volunteer]

Hi Tomich1949,

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I've had several different time periods when I had low iron.

Supplements can work, there are several different forms / chemistries available OTC (over the counter) en.wikipedia.org/wiki/Iron_...

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At one point I took supplements for 6 months, but was not able to get my iron level up to normal range, so while I was in for a Rituxan infusion they added a "bag" of iron to the infusion. That zoomed me up to the upper normal range and I have stayed there ever since.

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Len

[bkoffman CLL CURE Hero]

Low iron should not be caused by your CLL or Ibrutinib. A cause needs to be found. The most common sources of low iron is blood loss from the GI track or heavy menstruation. Poor intake or absorption is possible too. I would not recommend only treating with iron supplements without knowing why you have it.

[Tomich1949 in reply to bkoffman]

Thanks for helpful reply. Will talk to my haematologist about it.

[LeoPa in reply to Tomich1949]

Hemoglobin in the stool (occult blood) test will tell you whether you have bleeding in the bowel.

[Pibroch]

yes, I was diagnosed with low iron………I am a user of Ibrutinib . Since I had an iron infusion 2 months ago all has been well. John Shone. Wiltshire

[LarryK]

Been on Imbrutinib for 7 years. Did not have low iron levels until a hemorrhaging bladder in year 6. Once the bleeding stopped the iron level recovered with the help of Ferix-50 initially. Stopped supplementation when levels reached normal.