Ist treatment

[Guinness4822]

Just had first Ibrutinib this morning. 20 mins in no side effects yet. 😀👍

[Thundercat2]

Don't take this the wrong way but your post gave me a laugh! I assumed you were being a bit facetious. I hope your NON-side effects go on for a good long time!

[Guinness4822 in reply to Thundercat2]

Thanks so do I.

[Pacificview]

Are you on Ibrutinib solo or on a doublet treatment?

[Guinness4822]

Ibrutinib for 15 months and Venroclax along side after 4 months.

[Jacksc06]

Hi. Been on IB for four years. Mainly joint pain. Keep moving and drink LOTS of water. Best wishes.

[Guinness4822 in reply to Jacksc06]

Thanks

[CLLCalifornia-USA]

I’ve never had negative side effects. Ibrutinib gave me a life again. I take my three pills in the evening and go to bed. Just drink plenty of water. I’ve had two previous treatments and I feel Ibrutinib is a miracle drug in comparison. I hope it gives you a chance to enjoy life again. Best of luck. Sally

[Guinness4822 in reply to CLLCalifornia-USA]

Thanks Sally so far no side effects but it's only been 2 days. Glad it's worked well for you.

[tonyfrench]

I've been on Imbruvica for 5 1/2 years and bone and joint pain are the Main side effects I've had

[Guinness4822]

Hi Tony hope side effects not too bad. Thanks for reply.