3rd Rituxin infusion completed.

[Jacksc06]

Had my 3rd infusion today. Feeling generally burned out but determined to fight on. Blood transfusion on Thursday and final infusion next Tuesday. Love and strength to all.

[ava1967ir]

Hi Jack how many weeks is your treatment period with rituximab?

[Jacksc06 in reply to ava1967ir]

Hi 4 weeks.

[Ghounds]

Hang in there, nearly done. I hope the transfusion and R help you feel better.

[Jacksc06 in reply to Ghounds]

Thanks. Struggling though.

[Ghounds in reply to Jacksc06]

I'm sorry to hear that....do you have anyone to help you? Please consider mentioning to your GP and nurse specialist that you're in difficulties. Maybe have a chat with Macmillan about what may be available in your area. If you want to pm for a chat I'm always happy to hear from you. Take care.

[Jacksc06 in reply to Ghounds]

Thank you appreciated. A friend got me some.e shopping today and I have been speaking to macmillan today also.

[Ghounds in reply to Jacksc06]

Oh good, I'm pleased you have someone prepared to lend a hand. Macmillan are wonderful too.

[Jacksc06 in reply to Ghounds]

Yes, every little helps.

[Ballyhoo777]

Jack's, I am hoping that your infusions can get you back to feeling better soon. Best Wishes 🙏

[Jacksc06 in reply to Ballyhoo777]

Thank you.

[mush56]

My retuximab are every 28 days and 400mg veniclax every morning . How many retuximab are you having ? Wish I was as positive as you , 1st of 6 retuximab was nearly 2 weeks ago and still feel and I am being sick so tired and generally feel unwell . Venticlax is causing joint pain my arthritis is really flaring so taking painkillers by the bucket load , and it also causes sickness & diarrhoea but I’m struggling on as I couldn’t take Acalabrutanib because of bone pain . Doesn’t seem to be anything else to have but think this is going to have to stop .

[Jacksc06 in reply to mush56]

Hi. I am having 1 infusion each week for 4 weeks. I had 4 infusions of Bendamustine and Rituximab around 5 years ago which was pretty brutal. Indeed its tough and can be very depressing. My mantra is this could be so much worse. I try to feel blessed for each day yes I have ups and downs but try to look at the positives. e:g this treatment is to improve things in the long run. I have posted my journey on this site please feel free to browse and I hope it is of help. Best wishes

[AmCLL]

🕺you will pull out of this one in no time. Three Cheers For Jack hip hip hooray 🤹🏻‍♂️

[Jacksc06 in reply to AmCLL]

Many thanks.

[CLLCalifornia-USA]

I could handle the Rituxin, but the Bendamustine nearly killed me.😬 You sure are a heck of a strong man. Hang in there, you’ve got this. 🙏Sally

[Jacksc06 in reply to CLLCalifornia-USA]

Thank you Sally.

[Fran57]

Thanks for taking time to update us, when you’re not feeling at your best.

Keep going… the end is in sight!

Fran 😉

[Jacksc06 in reply to Fran57]

Thank you Fran. It's very Tough at the moment.

[Doggoneit101]

You got this! Take care of you for now. Thanks for the update.

[Jacksc06 in reply to Doggoneit101]

Thank you.

[Doggoneit101 in reply to Jacksc06]

Worst part of Rituxin for me was all the steroids they gave me to premedicate. Everytime as soon as I was unhooked from the IV I would blast off back to the car even forgetting to make my next appointment. Then I would clean and eat like a beast for the whole night afterwards. Next day I would crash hard and be exhausted for the entire day. Rest up your body needs it.

[Jacksc06 in reply to Doggoneit101]

Hi. Sounds very much like my experience first time around. After my infusions o developed sepsis and due to being tube fed my weight dropped to below 9 stones the steroids turned me into an eating machine. I ballooned to over 15st. Also had to step down from my job role due to post chemotherapy cognitive impairment which still affects me to this day. Best wishes.

[Doggoneit101 in reply to Jacksc06]

I'm sorry you have had it rough. I also have cognitive impairment and neuropathy in my feet from all my treatments. I know it's exhausting but you are doing great and will hopefully feel better soon. I took off after 1 appointment and was in the parking lot before my husband was even out of the hospital. He apparently stopped at the front desk and I didn't. He was like thanks for waiting on me. I was like I'm sorry I didn't even notice. I felt like I just drank a whole lot of really strong coffee. LoL We didn't even make it 🏠 before I was eating. On the bright side at least you don't have IBS with steroid munchies. I literally ate a half of a mini cheese cake last night. I don't even like cheese cake!

[Jacksc06 in reply to Doggoneit101]

Lol indeed I was buying foods that I can't stand and devouring it.