Hi. I am on Ibrutinib for cll for last 2 years. Bloods show good response. My question is related to the fact that I have in last 6 months put on a lot of weight in mainly my abdomen. Not much extra fat elsewhere on body. Could this be a side effect of the meds or could it be cll nodes becoming fatty and hiding cll cells. Could it be cll is metatastizing. Any views welcome.
Abdominal fat with cll : Hi. I am on Ibrutinib... - CLL Support
Abdominal fat with cll
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Timree
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lankisterguyVolunteer
Hi Timree,
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Here is a list of the previous 244 posts that mentioned weight gain. healthunlocked.com/cllsuppo...
it appears that several mention a BTKi like Ibrutinib, Acalabrutinib etc.
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Regarding metastasizing, since CLL is already circulating everywhere in your body, that term is not normally used in CLL, since unlike solid cancers, the CLL does not change from a single site to spreading further. The terms usually mentioned when CLL gets worse is progression or transformation.
cancer.gov/publications/dic...
en.wikipedia.org/wiki/Metas...
cancer.gov/publications/dic...
en.wikipedia.org/wiki/Malig....
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Len
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